Question follow-through · 29295

Rare Diseases: Medical Treatments

To ask the Secretary of State for Health and Social Care, what assessment she has made of whether the National Institute for Health and Care Excellence's cost-effectiveness methodology adequately reflects the particular circumstances of medicines for rare

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
11 Sept 2026
Target answer date
15 Sept 2026
Answer
22 Sept 2026 · 11 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

Votes on this topic

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Recorded timeline

  1. 11 Sept 2026

    Question tabled

    To ask the Secretary of State for Health and Social Care, what assessment she has made of whether the National Institute for Health and Care Excellence's cost-effectiveness methodology adequately reflects the particular circumstances of medicines for rare

  2. 15 Sept 2026

    Target answer date

    Date supplied by the official written-questions record.

  3. 22 Sept 2026

    Answer published

    The National Institute for Health and Care Excellence (NICE) has been able to recommend many medicines licensed for the treatment of rare diseases for use on the National Health Service where companies engage constructively in the process and price their ...

Open official record

Official data retrieved 1 Oct 2026.

Later records

Possible follow-up questions

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No later same-department questions indexed.

This is an absence in covered public data, not evidence that no follow-up occurred elsewhere.