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Question follow-through · 28726

Ehlers-Danlos Syndrome

To ask the Secretary of State for Health and Social Care, how many patients are awaiting specialist assessment for Ehlers-Danlos syndrome.

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
10 Sept 2026
Target answer date
14 Sept 2026
Answer
18 Sept 2026 · 8 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

Shared topic keywords suggest a connection; they do not establish a follow-up.

Votes on this topic

These Commons divisions share a topic label. The question did not necessarily lead to a vote.

Recorded timeline

  1. 10 Sept 2026

    Question tabled

    To ask the Secretary of State for Health and Social Care, how many patients are awaiting specialist assessment for Ehlers-Danlos syndrome.

  2. 14 Sept 2026

    Target answer date

    Date supplied by the official written-questions record.

  3. 18 Sept 2026

    Answer published

    I refer the Hon Member to the answer provided on 8 July in response to Question 10871.

Open official record

Official data retrieved 25 Sept 2026.

Later records

Possible follow-up questions

Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, what assessment she has made of the potential risk that women experiencing financial hardship could be disproportionately represented among women acting as surrogates under the proposed reforms.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy: Reform

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the proposed changes to legal parenthood in surrogacy arrangements on the level of disputes between surrogates and intended parents.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Child Rearing: Surrogacy

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, whether his Department holds information on the long-term welfare outcomes of children born through surrogacy.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy: Reform

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the proposed surrogacy reforms on the commercialisation of surrogacy.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, what steps she plans to take to ensure that women are not coerced and unduly pressured into becoming surrogates.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, what assessment she has made of the potential impact of increased financial payments in surrogacy arrangements on the rights and welfare of children born through those arrangements.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Surrogacy

14 Sept 2026 · To ask the Secretary of State for Health and Social Care, with reference to P.Q. v Secretary of State for Work and Pensions (2026), what assessment he has made of whether the current system for determining reasonable expenses in surrogacy arrangements pro

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Omaveloxolone

15 Sept 2026 · To ask the Secretary of State for Health and Social Care, what discussions her Department has had with Biogen regarding the company's withdrawal of its evidence submission to NICE for the appraisal of omaveloxolone for the treatment of Friedreich's ataxia

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Omaveloxolone

15 Sept 2026 · To ask the Secretary of State for Health and Social Care, what assessment her Department has made of the potential impact of the lack of NHS access to omaveloxolone following the termination of the NICE appraisal on patients with Friedreich's ataxia.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Rare Diseases: Health Services

15 Sept 2026 · To ask the Secretary of State for Health and Social Care, what steps she is taking to support timely access to effective treatments for people with rare and progressive diseases.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Omaveloxolone: Northern Ireland

15 Sept 2026 · To ask the Secretary of State for Health and Social Care, what discussions her Department has had with the Northern Ireland Department of Health regarding access to omaveloxolone for patients with Friedreich's ataxia in Northern Ireland.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Addictions: Prisoners

15 Sept 2026 · To ask the Secretary of State for Health and Social Care, what steps will the Minister take to help ensure that sustainable funding is secured for addiction treatment and rehabilitation programmes for prisoners in Northern Ireland.