Question follow-through · 5800

Metachromatic Leukodystrophy

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
1 Jun 2026
Target answer date
3 Jun 2026
Answer
1 Jul 2026 · 30 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

Shared topic keywords suggest a connection; they do not establish a follow-up.

Votes on this topic

These Commons divisions share a topic label. The question did not necessarily lead to a vote.

Recorded timeline

  1. 1 Jun 2026

    Question tabled

    To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.

  2. 3 Jun 2026

    Target answer date

    Date supplied by the official written-questions record.

  3. 1 Jul 2026

    Answer published

    Members of the UK National Screening Committee (UK NSC) have agreed that metachromatic leukodystrophy (MLD) would be a good candidate for the inclusion in a multi-condition in-service evaluation (ISE) within the United Kingdom’s newborn blood spot (NBS) s...

Open official record

Official data retrieved 28 Sept 2026.

Later records

Possible follow-up questions

Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Labyrinthitis: Health Services

3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve (a) awareness and (b) training among GPs on the (i) diagnosis and (ii) management of balance disorders.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Labyrinthitis: Health Services

3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the availability of specialist diagnostic and treatment services for balance disorders.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Labyrinthitis: Health Services

3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what guidance his Department provides to NHS organisations on signposting patients with balance disorders to relevant voluntary sector support organisations.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

NHS: Databases

8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what safeguards are in place within the NHS Federated Data Platform to help ensure that external contractors and third-party suppliers are not able to access identifiable patient data.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

NHS: Data processing

8 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether the Section 254 direction under the Health and Social Care Act 2012 will be published and laid before Parliament for full scrutiny.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

NHS: Databases

8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what steps his Department has taken to ensure that changes to data access arrangements within the NHS Federated Data Platform have been subject to a Data Protection Impact Assessment and appropriat

Unreviewed candidateSame MP and department; topic relationship is unreviewed

NHS: Databases

8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential implications for his policies of the recommendations of the cross-party parliamentary committee report on the role of Palantir in the NHS Federated Data

Unreviewed candidateSame MP and department; topic relationship is unreviewed

NHS: Databases

8 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department will develop and publish a fully costed strategy for the NHS Federated Data Platform contract.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Low Alcohol Drinks: Labelling

9 Jun 2026 · To ask the Secretary of State for Health and Social Care, what recent progress his Department has made on its plans to consult on updating the descriptor guidance for low and no alcohol products.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Low Alcohol Drinks: Age Assurance

9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department has made a recent assessment of the merits of banning the sale of low and no alcohol products to under 18s.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Low Alcohol Drinks: Labelling

9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department plans to conduct a formal consultation on uprating the descriptor ‘alcohol-free’ from 0.05% ABV to 0.5% ABV, in line with international standards.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Low Alcohol Drinks: Age Assurance

9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department plans to formally consult on banning the sale of low and no alcohol products to under 18s.