Question follow-through · 5800
Metachromatic Leukodystrophy
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 1 Jun 2026
- Target answer date
- 3 Jun 2026
- Answer
- 1 Jul 2026 · 30 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Labyrinthitis: Health Services · 3 Jun 2026
- Labyrinthitis: Health Services · 3 Jun 2026
- Labyrinthitis: Health Services · 3 Jun 2026
- NHS: Databases · 8 Jun 2026
- NHS: Data processing · 8 Jun 2026
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
1 Jun 2026
Question tabled
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of adding metachromatic leukodystrophy (MLD) to the NHS newborn blood spot screening programme.
3 Jun 2026
Target answer date
Date supplied by the official written-questions record.
1 Jul 2026
Answer published
Members of the UK National Screening Committee (UK NSC) have agreed that metachromatic leukodystrophy (MLD) would be a good candidate for the inclusion in a multi-condition in-service evaluation (ISE) within the United Kingdom’s newborn blood spot (NBS) s...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Labyrinthitis: Health Services
3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve (a) awareness and (b) training among GPs on the (i) diagnosis and (ii) management of balance disorders.
Labyrinthitis: Health Services
3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the availability of specialist diagnostic and treatment services for balance disorders.
Labyrinthitis: Health Services
3 Jun 2026 · To ask the Secretary of State for Health and Social Care, what guidance his Department provides to NHS organisations on signposting patients with balance disorders to relevant voluntary sector support organisations.
NHS: Databases
8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what safeguards are in place within the NHS Federated Data Platform to help ensure that external contractors and third-party suppliers are not able to access identifiable patient data.
NHS: Data processing
8 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether the Section 254 direction under the Health and Social Care Act 2012 will be published and laid before Parliament for full scrutiny.
NHS: Databases
8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what steps his Department has taken to ensure that changes to data access arrangements within the NHS Federated Data Platform have been subject to a Data Protection Impact Assessment and appropriat
NHS: Databases
8 Jun 2026 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential implications for his policies of the recommendations of the cross-party parliamentary committee report on the role of Palantir in the NHS Federated Data
NHS: Databases
8 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department will develop and publish a fully costed strategy for the NHS Federated Data Platform contract.
Low Alcohol Drinks: Labelling
9 Jun 2026 · To ask the Secretary of State for Health and Social Care, what recent progress his Department has made on its plans to consult on updating the descriptor guidance for low and no alcohol products.
Low Alcohol Drinks: Age Assurance
9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department has made a recent assessment of the merits of banning the sale of low and no alcohol products to under 18s.
Low Alcohol Drinks: Labelling
9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department plans to conduct a formal consultation on uprating the descriptor ‘alcohol-free’ from 0.05% ABV to 0.5% ABV, in line with international standards.
Low Alcohol Drinks: Age Assurance
9 Jun 2026 · To ask the Secretary of State for Health and Social Care, whether his Department plans to formally consult on banning the sale of low and no alcohol products to under 18s.