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Question follow-through · 108765

Rare Diseases: Medical Treatments

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the National Institute for Health and Care Excellence (NICE)'s current Highly Specialised Technologies Guidance, specifically where it does not recomm

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
27 Jan 2026
Target answer date
29 Jan 2026
Answer
3 Feb 2026 · 7 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

Shared topic keywords suggest a connection; they do not establish a follow-up.

Votes on this topic

These Commons divisions share a topic label. The question did not necessarily lead to a vote.

Recorded timeline

  1. 27 Jan 2026

    Question tabled

    To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the National Institute for Health and Care Excellence (NICE)'s current Highly Specialised Technologies Guidance, specifically where it does not recomm

  2. 29 Jan 2026

    Target answer date

    Date supplied by the official written-questions record.

  3. 3 Feb 2026

    Answer published

    The National Institute for Health and Care Excellence (NICE) operates a separate Highly Specialised Technologies (HST) programme to evaluate a very small number of medicines and treatments developed for ultra‑rare, severe and life‑limiting conditions. It ...

Open official record

Official data retrieved 28 Sept 2026.

Later records

Possible follow-up questions

Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Coronavirus: Vaccination

2 Feb 2026 · To ask the Secretary of State for Health and Social Care, what steps he is taking to assess the need for the provision of the vaccination against Covid for (a) children and (b) adults who are suffers of Long-Covid.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Medicine: Research

5 Feb 2026 · To ask the Secretary of State for Health and Social Care, what funding schemes his Department provides for medical researchers.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Medicine: Research

5 Feb 2026 · To ask the Secretary of State for Health and Social Care, what applicant-led funding streams are available to medical researchers.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Midwives: Screening

28 Aug 2026 · To ask the Secretary of State for Health and Social Care, (a) to what extent and (b) via what methods midwives are assessed for asking whether treatment for abnormal cervical cells has taken place at the first appointment.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Pregnancy: Screening

28 Aug 2026 · To ask the Secretary of State for Health and Social Care, at what time between 16 and 19 weeks trusts are assessed for providing the national standard of a scan to be provided between 16 to 19 weeks.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Health Services: Women

28 Aug 2026 · To ask the Secretary of State for Health and Social Care, to what extent her Department assesses whether NHS health trusts are providing a mechanism for women to report concerns about not being listened to.