Question follow-through · 108764
Rare Diseases: Health Services
To ask the Secretary of State for Health and Social Care, in regard to the upcoming closure of the the UK Rare Diseases Framework, what alternative evaluation methods will be used to assess and ensure the continued improvement of access to specialist care
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 27 Jan 2026
- Target answer date
- 29 Jan 2026
- Answer
- 30 Jan 2026 · 3 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Coronavirus: Vaccination · 2 Feb 2026
- Medicine: Research · 5 Feb 2026
- Medicine: Research · 5 Feb 2026
- Midwives: Screening · 28 Aug 2026
- Pregnancy: Screening · 28 Aug 2026
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
27 Jan 2026
Question tabled
To ask the Secretary of State for Health and Social Care, in regard to the upcoming closure of the the UK Rare Diseases Framework, what alternative evaluation methods will be used to assess and ensure the continued improvement of access to specialist care
29 Jan 2026
Target answer date
Date supplied by the official written-questions record.
30 Jan 2026
Answer published
The UK Rare Diseases Framework was published following the National Conversation on Rare Diseases, which received nearly 6,300 responses. This helped identify the four priorities of the framework in tackling rare diseases: helping patients get a final dia...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Coronavirus: Vaccination
2 Feb 2026 · To ask the Secretary of State for Health and Social Care, what steps he is taking to assess the need for the provision of the vaccination against Covid for (a) children and (b) adults who are suffers of Long-Covid.
Medicine: Research
5 Feb 2026 · To ask the Secretary of State for Health and Social Care, what funding schemes his Department provides for medical researchers.
Medicine: Research
5 Feb 2026 · To ask the Secretary of State for Health and Social Care, what applicant-led funding streams are available to medical researchers.
Midwives: Screening
28 Aug 2026 · To ask the Secretary of State for Health and Social Care, (a) to what extent and (b) via what methods midwives are assessed for asking whether treatment for abnormal cervical cells has taken place at the first appointment.
Pregnancy: Screening
28 Aug 2026 · To ask the Secretary of State for Health and Social Care, at what time between 16 and 19 weeks trusts are assessed for providing the national standard of a scan to be provided between 16 to 19 weeks.
Health Services: Women
28 Aug 2026 · To ask the Secretary of State for Health and Social Care, to what extent her Department assesses whether NHS health trusts are providing a mechanism for women to report concerns about not being listened to.