Question follow-through · 104132
Tofersen
To ask the Secretary of State for Health and Social Care, how many people diagnosed with SOD 1 MND are currently unable to access tofersen.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 8 Jan 2026
- Target answer date
- 12 Jan 2026
- Answer
- 19 Jan 2026 · 11 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
8 Jan 2026
Question tabled
To ask the Secretary of State for Health and Social Care, how many people diagnosed with SOD 1 MND are currently unable to access tofersen.
12 Jan 2026
Target answer date
Date supplied by the official written-questions record.
19 Jan 2026
Answer published
Companies may put in place Early Access Programmes (EAPs) to allow early access to new medicines which have been licensed by the Medicines and Healthcare Products Regulatory Agency, but which do not yet have National Institute for Health and Care Excellen...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
No later same-department questions indexed.
This is an absence in covered public data, not evidence that no follow-up occurred elsewhere.