Question follow-through · 77949
Cerliponase Alfa
To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Excellence on securing long term access to cerliponase alfa.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 16 Sept 2025
- Target answer date
- 14 Oct 2025
- Answer
- 14 Oct 2025 · 28 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- NHS: Drugs · 10 Oct 2025
- NHS: Drugs · 10 Oct 2025
- NHS: Drugs · 10 Oct 2025
- NHS: Drugs · 10 Oct 2025
- NHS: Drugs · 10 Oct 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
16 Sept 2025
Question tabled
To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Excellence on securing long term access to cerliponase alfa.
14 Oct 2025
Target answer date
Date supplied by the official written-questions record.
14 Oct 2025
Answer published
Officials in the Department have had a number of discussions with colleagues in the National Institute for Health and Care Excellence (NICE) about the ongoing appraisal of cerliponase alfa (Brineura) for the treatment of neuronal ceroid lipofuscinosis typ...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, If he will make an assessment of the adequacy of his Department's processes for (a) forecasting, (b) alerting and (c) responding to medicine shortages.
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the effectiveness of the fortnightly notification provided to medicine suppliers regarding medicine shortages.
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what discussions he has had with his international counterparts on (a) the suitability of country-level forecasts of supply needs for medicines up to three years in advance and (b) the steps needed
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure medicine shortages do not impact clinicians' ability to prescribe medicines that are best suited to the patient.
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to decrease the level of the impact of medicine shortages on patients.
NHS: Drugs
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps is he taking to reduce the level of medicine access inequalities in England; and what discussions he has had with his counterparts in the devolved Administrations on this matter.
Pharmacy: Finance
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential impact of NHS tariff thresholds on pharmacies' ability to source medicines.
Health Services: Advocacy
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the robustness of protections for patient advocates' (a) personal care interactions with NHS services and (b) their advocacy for patients.
Patients: Travel
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support NHS patient transport for (a) elderly people and (b) other patients.
Givinostat
14 Oct 2025 · To ask the Secretary of State for Health and Social Care, what recent discussions he has had with NHS England on Innovative Medicines funding for givinostat.
IVF: Standards
16 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that Integrated Care Boards implement National Institute for Health and Care Excellence guidance on access to NHS-funded IVF treatment.
IVF: Finance
16 Oct 2025 · To ask the Secretary of State for Health and Social Care, what assessment she has made of the adequacy of national funding allocations to Integrated Care Boards to support the delivery of levels of IVF treatment recommended by NICE.