Question follow-through · 71789
Rare Diseases: Medical Treatments
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of developing new NICE criteria for rare conditions that do not meet the 300 patient threshold for the Highly Specialised Technology appraisal sy
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 29 Aug 2025
- Target answer date
- 2 Sept 2025
- Answer
- 9 Sept 2025 · 11 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- General Practitioners: Dermatology · 2 Sept 2025
- Doctors: Training · 10 Oct 2025
- Community Health Services: Medical Equipment · 27 Oct 2025
- Gambling: Rural Areas · 30 Oct 2025
- Palestine Action: Hunger Strikes · 8 Dec 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
29 Aug 2025
Question tabled
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of developing new NICE criteria for rare conditions that do not meet the 300 patient threshold for the Highly Specialised Technology appraisal sy
2 Sept 2025
Target answer date
Date supplied by the official written-questions record.
9 Sept 2025
Answer published
Decisions on whether medicines should be evaluated through the National Institute for Health and Care Excellence’s (NICE) highly specialised technologies (HST) programme are taken by NICE itself against a set of published criteria that have been developed...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
General Practitioners: Dermatology
2 Sept 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking with devolved Administrations to help reduce waiting times from GP referral to first routine dermatology appointments.
Doctors: Training
10 Oct 2025 · To ask the Secretary of State for Health and Social Care, how many doctors who completed foundation training (a) successfully secured a specialty training post immediately after completion, (b) remained without a specialty training post one year after com
Community Health Services: Medical Equipment
27 Oct 2025 · To ask the Secretary of State for Health and Social Care, what assessment he has made of trends in the level of geographical variation in access to community care equipment in (a) general, (b) rural areas and (c) remote areas.
Gambling: Rural Areas
30 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that gambling harm prevention campaigns reach rural and remote communities.
Palestine Action: Hunger Strikes
8 Dec 2025 · To ask the Secretary of State for Health and Social Care, what clinical monitoring arrangements are in place for Palestine Action activists on hunger strike; and whether hospital care will be provided if medically advised.
ME/CFS: Health Services
15 Apr 2026 · To ask the Secretary of State for Health and Social Care, for what reason planning for a specialised service for very severe ME/CFS has been paused until April 2027.