Question follow-through · 70805
Metachromatic Leukodystrophy: Medical Treatments
To ask the Secretary of State for Health and Social Care, what steps he has taken to improve access to treatments for metachromatic leukodystrophy.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 29 Aug 2025
- Target answer date
- 4 Sept 2025
- Answer
- 8 Sept 2025 · 10 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Coronavirus: Vaccination · 29 Oct 2025
- Wheelchairs: Children · 30 Oct 2025
- NHS: Standards · 10 Nov 2025
- NHS Trusts: ICT · 10 Nov 2025
- NHS: Electronic Patient Record Systems · 10 Nov 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
29 Aug 2025
Question tabled
To ask the Secretary of State for Health and Social Care, what steps he has taken to improve access to treatments for metachromatic leukodystrophy.
4 Sept 2025
Target answer date
Date supplied by the official written-questions record.
8 Sept 2025
Answer published
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as metachromatic leukodystrophy. One of the framework’s priorities is improving access to specialist care, treatments...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Coronavirus: Vaccination
29 Oct 2025 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the impact of the cost to the individual of a COVID-19 vaccination on (a) vaccination rates and (b) public health more widely.
Wheelchairs: Children
30 Oct 2025 · To ask the Secretary of State for Health and Social Care, whether his Department has considered the potential merits of introducing financial support for the cost of temporary wheelchairs for children following discharge from an NHS hospital.
NHS: Standards
10 Nov 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to maintain levels of (a) quality of care and (b) patient safety following cost improvement plans in the NHS.
NHS Trusts: ICT
10 Nov 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that NHS trusts are not subject to inappropriate (a) pricing and (b) contractual practices by major IT suppliers.
NHS: Electronic Patient Record Systems
10 Nov 2025 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of Oracle Cerner’s (a) pricing and (b) upgrade policies on (i) St George's University Hospitals NHS Foundation Trust and (ii) other NHS trusts.
ME/CFS: Health Services
24 Nov 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to support people with myalgic encephalomyelitis in South West London.
ME/CFS: Health Services
24 Nov 2025 · To ask the Secretary of State for Health and Social Care, if he will make an assessment of the adequacy of myalgic encephalomyelitis treatment in South West London.
Incontinence: Wandsdworth
16 Dec 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the adequate availability of NHS funded continence products in the London Borough of Wandsworth.
Hospitals: Sleeping Rough
8 Jan 2026 · To ask the Secretary of State for Health and Social Care, how many people have been discharged from hospitals into rough sleeping in each year since 2023.
Health Services: Homelessness
8 Jan 2026 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of access to healthcare services for people facing homelessness.
Health Services: Homelessness
8 Jan 2026 · To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the number of Integrated Care Boards currently complying with National Institute for Health and Care Excellence guidance on the provision of intermediate
NHS: Workplace Pensions
6 Mar 2026 · To ask the Secretary of State for Health and Social Care, when he expects to announce the revised timetable for provision of McCloud Remedy statements to NHS workers who have already retired but have not been able to make their McCloud choice.