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Question follow-through · 38487

Cerliponase Alfa

To ask the Secretary of State for Health and Social Care, if he will hold discussions with relevant stakeholders on providing access to Brineura for patients with neuronal ceroid lipofuscinosis type 2 (CLN2).

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
14 Mar 2025
Target answer date
18 Mar 2025
Answer
26 Mar 2025 · 12 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

Votes on this topic

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Recorded timeline

  1. 14 Mar 2025

    Question tabled

    To ask the Secretary of State for Health and Social Care, if he will hold discussions with relevant stakeholders on providing access to Brineura for patients with neuronal ceroid lipofuscinosis type 2 (CLN2).

  2. 18 Mar 2025

    Target answer date

    Date supplied by the official written-questions record.

  3. 26 Mar 2025

    Answer published

    The National Institute for Health and Care Excellence (NICE) is currently developing guidance for the National Health Service on whether cerliponase alfa, also known as Brineura, can be recommended for routine NHS funding, considering real-world evidence ...

Open official record

Official data retrieved 28 Sept 2026.

Later records

Possible follow-up questions

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No later same-department questions indexed.

This is an absence in covered public data, not evidence that no follow-up occurred elsewhere.