Question follow-through · 24991
Rare Diseases: Medical Treatments
To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on ensuring that patient access to treatment for very rare diseases is not delayed in circumstances where there is uncertainty on the incidence and
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 20 Jan 2025
- Target answer date
- 23 Jan 2025
- Answer
- 23 Jan 2025 · 3 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Hospitals: Repairs and Maintenance · 21 Jan 2025
- Givinostat · 22 Jan 2025
- Hospitals: Construction · 28 Jan 2025
- Post-mortems · 28 Jan 2025
- NHS Foundation Trusts · 28 Jan 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
20 Jan 2025
Question tabled
To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on ensuring that patient access to treatment for very rare diseases is not delayed in circumstances where there is uncertainty on the incidence and
23 Jan 2025
Target answer date
Date supplied by the official written-questions record.
23 Jan 2025
Answer published
The Department has regular discussions with the National Institute for Health and Care Excellence (NICE) about a range of issues, including the criteria for routing topics to the Highly Specialised Technologies (HST) programme.Decisions on whether medicin...
Official data retrieved 28 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Hospitals: Repairs and Maintenance
21 Jan 2025 · To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the potential merits of centrally procuring scaffolding to prop up hospitals awaiting funding via the New Hospital Programme.
Givinostat
22 Jan 2025 · To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of increasing access to givinostat.
Hospitals: Construction
28 Jan 2025 · To ask the Secretary of State for Health and Social Care, how much additional funding for maintenance at delayed schemes in the New Hospital Programme has been made available for each hospital in each year.
Post-mortems
28 Jan 2025 · To ask the Secretary of State for Health and Social Care, if he will take steps with Cabinet colleagues to help reduce the turnaround times for (a) hospital and (b) HM Coroner's Office post mortems in (i) neonatal and paediatric and (ii) other cases.
NHS Foundation Trusts
28 Jan 2025 · To ask the Secretary of State for Health and Social Care, which health foundation trusts other than Devon are under NHS Oversight Framework Level 4.
Dental Services: Torbay
4 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to increase the number of NHS dentists in Torbay constituency.
Independent Commission into Adult Social Care
7 Feb 2025 · To ask the Secretary of State for Health and Social Care, what the expected timeline is for Baroness Casey's Commission into Adult Social Care, including the dates for evidence submission.
Post-mortems: Children
21 Feb 2025 · To ask the Secretary of State for Health and Social Care, how many parents who have experienced the death of a child have waited more than three months to receive the final post-mortem report.
Health Services: Standards
6 Mar 2025 · To ask the Secretary of State for Health and Social Care, which Minister has oversight of the Getting It Right First Time programme.
Torbay and South Devon NHS Foundation Trust: Standards
6 Mar 2025 · To ask the Secretary of State for Health and Social Care, which services GIRFT have been reviewing as part of the healthcare system that impacts on Torbay and South Devon NHS Foundation Trust in the last two years.
Health Services
6 Mar 2025 · To ask the Secretary of State for Health and Social Care, what steps should be taken prior to a test for change on a healthcare offer.
Hospitals: Radio
12 Mar 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help support hospital radio stations.