Question follow-through · 24718

Diseases: Diagnosis and Medical Treatments

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) diagnosis and (b) treatment pathways for patients with (i) hypermobile Ehlers-Danlos Syndrome, (ii) Postural Orthostatic Tachycardia Syndrome and (iii) Mast C

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
17 Jan 2025
Target answer date
21 Jan 2025
Answer
23 Jan 2025 · 6 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

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Recorded timeline

  1. 17 Jan 2025

    Question tabled

    To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) diagnosis and (b) treatment pathways for patients with (i) hypermobile Ehlers-Danlos Syndrome, (ii) Postural Orthostatic Tachycardia Syndrome and (iii) Mast C

  2. 21 Jan 2025

    Target answer date

    Date supplied by the official written-questions record.

  3. 23 Jan 2025

    Answer published

    The Government is committed to improving the lives of those living with rare diseases, such as hypermobile Ehlers-Danlos syndrome (hEDS) and mast cell activation syndrome. The UK Rare Diseases Framework sets out four priorities, collaboratively developed ...

Open official record

Official data retrieved 28 Sept 2026.

Later records

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