Question follow-through · 14715
Ehlers-Danlos Syndrome
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support people diagnosed with Ehlers-Danlos syndrome.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 18 Nov 2024
- Target answer date
- 20 Nov 2024
- Answer
- 25 Nov 2024 · 7 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Health Services: Leeds · 20 Nov 2024
- Health Services: Digital Technology · 20 Nov 2024
- Health Services: Leeds · 20 Nov 2024
- Neurological Diseases: Health Services · 17 Dec 2024
- Social Services: Finance · 27 Feb 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
18 Nov 2024
Question tabled
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support people diagnosed with Ehlers-Danlos syndrome.
20 Nov 2024
Target answer date
Date supplied by the official written-questions record.
25 Nov 2024
Answer published
The Government is committed to improving the lives of those living with rare diseases, such as Ehlers-Danlos Syndrome (EDS). The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community. These include b...
Official data retrieved 27 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Health Services: Leeds
20 Nov 2024 · To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of implementing the recommendations of the briefing paper by Healthwatch Leeds entitled Communicating change, published in September
Health Services: Digital Technology
20 Nov 2024 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure that people with additional communication needs are able to access (a) online appointment bookings and (b) other digital healthcare services.
Health Services: Leeds
20 Nov 2024 · To ask the Secretary of State for Health and Social Care, if he will hold discussions with Healthwatch Leeds on the potential merits of implementing their policy on communication, coordination and compassion in other parts of the country.
Neurological Diseases: Health Services
17 Dec 2024 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce waiting times for people with (a) Motor Neurone Disease and (b) other degenerative conditions.
Social Services: Finance
27 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that social care providers are receiving the £600 million pounds allocated for social care in the Autumn Budget 2024.
Pharmacy: Finance
26 Mar 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that independent community pharmacies have adequate funding to sustain their (a) businesses and (b) services.
Avoidant/Restrictive Food Intake Disorder: Children
31 Mar 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to support families with children suffering from Avoidant Restrictive Food Intake Disorder.
Nurses: Registration
8 Apr 2025 · To ask the Secretary of State for Health and Social Care, if his Department will have discussions with the Nursing and Midwifery Council on the potential merits of reducing or removing the annual registration fee for nurses.
Hormone Replacement Therapy
17 Jun 2025 · To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the potential merits of increasing levels of access to hormone replacement therapy treatment on the NHS.
Cervical Cancer: Screening
20 Jun 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to expand access to smear tests.
General Practitioners: Carers
24 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that people in full-time employment who have caring responsibilities can access GP appointments.
Dental Services: Carers
24 Oct 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve access to NHS dental services for (a) carers and (b) frontline care workers.