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Question follow-through · 12498

Rare Diseases: Medical Treatments

To ask the Secretary of State for Health and Social Care, what recent discussions his Department has had with NICE on reducing the time taken for patients to access treatment for very rare diseases in cases when there is uncertainty on the (a) incidence a

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
4 Nov 2024
Target answer date
6 Nov 2024
Answer
11 Nov 2024 · 7 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

Shared topic keywords suggest a connection; they do not establish a follow-up.

Votes on this topic

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Recorded timeline

  1. 4 Nov 2024

    Question tabled

    To ask the Secretary of State for Health and Social Care, what recent discussions his Department has had with NICE on reducing the time taken for patients to access treatment for very rare diseases in cases when there is uncertainty on the (a) incidence a

  2. 6 Nov 2024

    Target answer date

    Date supplied by the official written-questions record.

  3. 11 Nov 2024

    Answer published

    The Department has regular discussions with the National Institute for Health and Care Excellence (NICE) about a range of issues, including in relation to timelines for appraisals. The NICE aims to issue draft guidance on new medicines, including for rare...

Open official record

Official data retrieved 27 Sept 2026.

Later records

Possible follow-up questions

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11 Dec 2024 · To ask the Secretary of State for Health and Social Care, if he will issue guidance to integrated care boards on representation for NHS Primary Care stakeholders.

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3 Jan 2025 · To ask the Secretary of State for Health and Social Care, if he will set targets to reduce memory clinic waiting times in (a) Torbay, (b) Exeter and (c) Barnstaple.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Ambulance Services: Standards

13 Jan 2025 · To ask the Secretary of State for Health and Social Care, what the average waiting time is for (a) ambulances held in queues and (b) people waiting at home for an ambulance.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Ambulance Services: Standards

13 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to reduce ambulance waiting times (a) in the A&E queue and (b) for Torbay and South Devon NHS foundation trust.