WESTMINSTER RADAR
Search
My MPs
Menu

Question follow-through · 8649

Rare Diseases: Health Services

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of the National Paroxysmal Nocturnal Haemoglobinuria Service for care coordination for people with rare diseases; and what steps his

answeredDepartment of Health and Social Care

About this written question

A written question asks a government minister for information in writing. Parliament publishes the question and any answer.

Answering body
Department of Health and Social Care
Tabled
11 Oct 2024
Target answer date
15 Oct 2024
Answer
21 Oct 2024 · 10 calendar days after tabling

Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.

More questions by this MP on Health and care

Shared topic keywords suggest a connection; they do not establish a follow-up.

Votes on this topic

These Commons divisions share a topic label. The question did not necessarily lead to a vote.

Recorded timeline

  1. 11 Oct 2024

    Question tabled

    To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of the National Paroxysmal Nocturnal Haemoglobinuria Service for care coordination for people with rare diseases; and what steps his

  2. 15 Oct 2024

    Target answer date

    Date supplied by the official written-questions record.

  3. 21 Oct 2024

    Answer published

    The UK Rare Diseases Framework sets out four priorities to improve the lives of people living with rare diseases, such as Paroxysmal Nocturnal Haemoglobinuria (PNH). This includes the priority of improving co-ordination of care.NHS England commissions ser...

Open official record

Official data retrieved 27 Sept 2026.

Later records

Possible follow-up questions

Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Sunscreens

14 Jan 2025 · To ask the Secretary of State for Health and Social Care, whether he is taking steps to improve the usage of sunscreen of factor 30 and above.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Skin Cancer: Health Education

14 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to promote awareness of skin cancer (a) prevention measures, (b) signs and (c) symptoms.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Sunbeds

14 Jan 2025 · To ask the Secretary of State for Health and Social Care, what assessment his Department has made of trends in the level of sunbed usage by adults.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Bipolar Disorder: Diagnosis

30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to improve training for healthcare professionals to better (a) recognise and (b) diagnose bipolar.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Bipolar Disorder: Health Services and Social Security Benefits

30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what discussions he has had with the Secretary of State for Work and Pensions on improving co-ordination between healthcare services and the welfare system to support people with bipolar.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Bipolar Disorder: Diagnosis

30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to improve early diagnosis of bipolar.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Bipolar Disorder: Mental Health Services

30 Jan 2025 · To ask the Secretary of State for Health and Social Care, whether he plans to introduce specialist bipolar pathways in NHS mental health services.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

CJD: Research

21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) support research into Creutzfeldt Jakob Disease and (b) ensure that UK research does not fall behind well-funded programmes in other countries.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

CJD: Health Professions

21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that there are an adequate number of health professionals trained in (a) identifying and (b) supporting people affected by Creutzfeldt-Jakob disease (CJD).

Unreviewed candidateSame MP and department; topic relationship is unreviewed

CJD: Medical Treatments

21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help support advances n CJD treatment.

Unreviewed candidateSame MP and department; topic relationship is unreviewed

CJD: Finance

21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what collaboration there is between NHS England, the National Institute for Health and Care Research and the Medical Research Council on Creutzfeldt–Jakob disease funding; and what assessment he ha

Unreviewed candidateSame MP and department; topic relationship is unreviewed

Spinal Muscular Atrophy: Screening

17 Apr 2025 · To ask the Secretary of State for Health and Social Care, what his timetable is for releasing funds to support the UK National Screening Committee’s review of newborn screening for Spinal Muscular Atrophy.