Question follow-through · 8648
Rare Diseases: Health Services
To ask the Secretary of State for Health and Social Care, what resources are available to support care coordination across (a) geographical areas and (b) disciplines for rare and ultra-rare conditions.
About this written question
A written question asks a government minister for information in writing. Parliament publishes the question and any answer.
- Answering body
- Department of Health and Social Care
- Tabled
- 11 Oct 2024
- Target answer date
- 15 Oct 2024
- Answer
- 21 Oct 2024 · 10 calendar days after tabling
Elapsed calendar days describe the record timeline, not whether Parliament considers an answer on time.
More questions by this MP on Health and care
- Sunscreens · 14 Jan 2025
- Skin Cancer: Health Education · 14 Jan 2025
- Sunbeds · 14 Jan 2025
- Bipolar Disorder: Diagnosis · 30 Jan 2025
- Bipolar Disorder: Health Services and Social Security Benefits · 30 Jan 2025
Shared topic keywords suggest a connection; they do not establish a follow-up.
Votes on this topic
- Terminally Ill Adults (End of Life) Bill: Second Reading · 11 Sept 2026
- Health Bill: Report Stage: Amendment 1 · 8 Sept 2026
- Health Bill: Report Stage: New Clause 143 · 8 Sept 2026
These Commons divisions share a topic label. The question did not necessarily lead to a vote.
Recorded timeline
11 Oct 2024
Question tabled
To ask the Secretary of State for Health and Social Care, what resources are available to support care coordination across (a) geographical areas and (b) disciplines for rare and ultra-rare conditions.
15 Oct 2024
Target answer date
Date supplied by the official written-questions record.
21 Oct 2024
Answer published
We remain committed to the UK Rare Diseases Framework, which highlights better coordination of care as a priority to improve the lives of people with rare diseases.Under England’s Rare Diseases Action Plans, we have committed to a range of measures to imp...
Official data retrieved 27 Sept 2026.
Later records
Possible follow-up questions
Strong links require the same MP, department and exact heading. Other same-department questions are shown as unreviewed candidates, not as confirmed follow-ups. No debate link is asserted unless a stable source relationship exists.
Sunscreens
14 Jan 2025 · To ask the Secretary of State for Health and Social Care, whether he is taking steps to improve the usage of sunscreen of factor 30 and above.
Skin Cancer: Health Education
14 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to promote awareness of skin cancer (a) prevention measures, (b) signs and (c) symptoms.
Sunbeds
14 Jan 2025 · To ask the Secretary of State for Health and Social Care, what assessment his Department has made of trends in the level of sunbed usage by adults.
Bipolar Disorder: Diagnosis
30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to improve training for healthcare professionals to better (a) recognise and (b) diagnose bipolar.
Bipolar Disorder: Health Services and Social Security Benefits
30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what discussions he has had with the Secretary of State for Work and Pensions on improving co-ordination between healthcare services and the welfare system to support people with bipolar.
Bipolar Disorder: Diagnosis
30 Jan 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to improve early diagnosis of bipolar.
Bipolar Disorder: Mental Health Services
30 Jan 2025 · To ask the Secretary of State for Health and Social Care, whether he plans to introduce specialist bipolar pathways in NHS mental health services.
CJD: Research
21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) support research into Creutzfeldt Jakob Disease and (b) ensure that UK research does not fall behind well-funded programmes in other countries.
CJD: Health Professions
21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that there are an adequate number of health professionals trained in (a) identifying and (b) supporting people affected by Creutzfeldt-Jakob disease (CJD).
CJD: Medical Treatments
21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help support advances n CJD treatment.
CJD: Finance
21 Feb 2025 · To ask the Secretary of State for Health and Social Care, what collaboration there is between NHS England, the National Institute for Health and Care Research and the Medical Research Council on Creutzfeldt–Jakob disease funding; and what assessment he ha
Spinal Muscular Atrophy: Screening
17 Apr 2025 · To ask the Secretary of State for Health and Social Care, what his timetable is for releasing funds to support the UK National Screening Committee’s review of newborn screening for Spinal Muscular Atrophy.