Peter Dowd MP: written questions

Written questions

• Rare Diseases: Health ServicesDepartment of Health and Social CareTabled 11 Oct 2024AnsweredUIN 8648More

  Question: To ask the Secretary of State for Health and Social Care, what resources are available to support care coordination across (a) geographical areas and (b) disciplines for rare and ultra-rare conditions.

  Answer: We remain committed to the UK Rare Diseases Framework, which highlights better coordination of care as a priority to improve the lives of people with rare diseases.Under England’s Rare Diseases Action Plans, we have committed to a range of measures to imp...

  Answered 21 Oct 2024

  Original Parliament record
• Rare Diseases: Health ServicesDepartment of Health and Social CareTabled 11 Oct 2024AnsweredUIN 8647More

  Question: To ask the Secretary of State for Health and Social Care, what assessment he has made of the progress of work under the UK Rare Diseases Framework; and what steps his Department plans to take to ensure that rare disease continues to be a health priority.

  Answer: A rare disease is defined as a disease or condition which affects fewer than one in 2,000 people within the general population. While they are individually rare, they are collectively common, and one in 17 people will be affected by a rare disease at some...

  Answered 21 Oct 2024

  Original Parliament record
• Rare Diseases: Health ServicesDepartment of Health and Social CareTabled 11 Oct 2024AnsweredUIN 8646More

  Question: To ask the Secretary of State for Health and Social Care, whether his Department plans to take steps to prioritise improvement of care for (a) rare blood disorders and (b) other rare and ultra-rare conditions.

  Answer: Improving the lives of people living with rare and ultra-rare conditions, such as rare blood disorders, continues to be a health priority. We remain committed to the UK Rare Diseases Framework, which highlights four priorities to improve the lives of peop...

  Answered 21 Oct 2024

  Original Parliament record