Karin Smyth MP: speeches

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Speeches

30 Jan 2025 · Women’s Health Strategy · Hansard source
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I will try to be brief, but this is hard to explain— [ Interruption. ] No, this is to answer the right hon. Gentleman. Targets in the NHS have not been met since 2015, which was under his Government’s watch but, actually, this target has been met—there are only three places in the country that do not have a hub—so there is no target for them because that has already been met. The issue now is to look at the outcomes from those hubs to see how they are performing. We think, and the system thinks, that they do a good job. That is why they are staying, why we are committed to them, and why we want to learn from them.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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The hon. Gentleman is right to highlight those long waits. That is why we particularly highlighted gynaecology for attention in the elective reform plan. It is shocking that the last Government left 600,000 women on these lists, and moving back to making sure people wait no longer than 18 weeks will predominantly be helping those women. The hon. Gentleman is also right to highlight the appalling maternity situation. The Secretary of State and my noble Friend Baroness Merron, who leads in this area, have met many families to discuss their experiences, and we know those experiences are unacceptable. We know there are big issues around staffing, and it is a priority to work with NHS England to make sure that we grow workforce capacity as quickly as possible so that we can be sure that those situations are safe. There are many debates in this place about the issue and we will continue to update the House.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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My hon. Friend makes an excellent point about both the work of the Chair of the Select Committee, my hon. Friend the Member for Luton North (Sarah Owen), and the importance of primary and community care recognising, listening to and supporting women through women’s health, as well as making sure that our knowledge and good practice is spread across the team. This is an area where different systems have women’s health hubs using different teams and different technology, and they have different links to secondary care colleagues and specialist colleagues. By listening to each other and working together, they are so good at spreading some of that good practice.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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My hon. Friend makes an excellent point about maternity services, which are inconsistent and not good enough around the country. It is a source of great alarm for many people. Maternity absolutely remains a high priority within the overall women’s health strategy.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I completely agree with the right hon. Member. Donna Ockenden’s work is hugely valuable, and a lot of faith and trust has been placed in it, particularly by families. I do not know specific dates, but the Secretary of State and my noble Friend Baroness Merron, who leads on this work, have been discussing the matter with Donna Ockenden. I am happy to get back to the right hon. Member with the details. On the specific point about the remit, I do not know the answer to that question. It is entirely sensible to look at progress and learn from mistakes. I know it is a challenge system, and we have to learn from those areas. If there are specific things to report back to the right hon. Member, I will get back to him, but this issue is absolutely a priority. The Secretary of State is meeting families directly. We know and understand that we have to do much better on this for everybody.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I addressed most of those points in my outline statement. I think the shadow Minister wrote her comments when the Opposition thought that we were cancelling things, only to find out that we are not cancelling things. I have made clear our commitment to the women’s health strategy and how we seek to instruct the system at a local level to serve the needs of women and particularly prioritise those waiting lists. As I have outlined, the targets have already been achieved. Unusually, I will give a bit of credit to the other side, because a lot of this was rolled out and it was good practice, and the system still thinks that it is good practice, so sometimes Opposition Members should take a win. We are committed to that, it is embedded in the system, and we look forward to outcomes being improved for women.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I absolutely will give my hon. Friend that assurance. The situation will change partly because there are more people like her and more women in this place. We have more women across all parties raising this issue and more women in senior positions in the National Institute for Health and Care Research. Crucially, we have women leading in science and research. Dealing with the misogyny around the system and in medical systems is also important for making sure that women lead this work. We want to make sure that the NIHR, which has a strategy to address this issue, rectifies the situation that she outlines.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I thank the Committee Chair for her question. I think she was congratulating the previous Committee and Chair rather than those who are now in opposition. I was very pleased to witness some of that work when we were in opposition, and she is absolutely right about it. The work of many women Members when in opposition, and, to be fair, of many women in the previous Government, have made sure that issues around endometriosis have risen up the agenda; indeed, we had a good debate in the Chamber recently. We are committed to taking forward the strategy. We think the health hubs, for example, are doing a good job, but there is a lot of learning to be done on them, and we will continue to do that.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I thank the hon. Lady for giving me the opportunity to set out our commitment to the women’s health strategy and everything that this Government are doing to fix our broken NHS, clean up the mess that the Conservatives left after 14 years and get women treated on time again. When we came into office we inherited record waiting lists. The gynaecology waiting list stood at just under 600,000 women. Let that sink in—600,000 women in pain, waiting to be cared for. Almost half the women on gynaecology waiting lists are waiting more than 18 weeks. That is why the Prime Minister kicked off 2025 with our elective reform plan, setting out how we will cut the longest waiting lists from 18 months to 18 weeks. Our new agreement with the independent sector will mean that, where there is spare capacity in the private sector, women will be treated faster for gynaecology care, paid for by the state. The Government are also committed to rooting out the appalling inequalities in maternity care. We are supporting failing trusts to make rapid improvements, training thousands more midwives for the first time, and we will set an explicit target to close the black and Asian maternal mortality gap. We are piloting a training programme to help avoid brain injury for babies in childbirth and, if successful, we will crack on with rolling it out nationally this year. In October, we extended the baby loss certificate service to help mums and dads who have suffered the heartbreak of pregnancy loss. Let me also address the issue of women’s health hubs. There was a target in last year’s planning guidance to roll out pilot women’s health hubs across the country by last December. Today, there are at least 80 hubs, and at least nine out of every10 integrated care systems have an open women’s health hub. Let me correct some fake news. We are not closing these hubs; we are not cutting them. The target to roll them out was in last year’s planning guidance. It was achieved in 93% of integrated care systems, which is why the target is not repeated in this year’s guidance—it has been met in 39 out of 42 areas. Today, we have slimmed down the number of targets for the NHS so that we can focus on fixing the fundamentals —the system that the previous Government broke. We are instructing the NHS to prioritise: cutting waiting times for operations, A&E and ambulances; making it easier for people to see a GP or a dentist; and improving the mental health of the nation. That will mean around 60,000 women with suspected cancer are diagnosed earlier and treated faster; more than 200,000 extra women will be treated within 18 weeks, as we drive down long waits; and fewer women will be forced to wait 12 hours in A&E. That is the difference that a Labour Government are making to women’s health.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I have made that commitment several times from this Dispatch Box. We think the women’s health hubs are working across the country—I do not know exactly how the hon. Gentleman’s hub is working at the moment. Only three areas do not have a women’s health hub, and we expect them to get on with that and have one. We will ensure we have the learning from them across the country.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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Further to that point of order, Madam Deputy Speaker. I absolutely, unequivocally apologise.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I am not entirely clear what the hon. Member is referring to. I have been clear that we are committed to the women’s health strategy, and we will take it forward as part of the 10-year plan. Most of the— [ Interruption. ] If it was about the women’s health hubs, they are mainly there but in different forms and with different levels of services. We want to ensure that the systems reflect their local population needs. That is an entirely proper way to go about things. As I said, unusually, we think that many of the hubs, which were rolled out as pilots under the previous Administration, are doing a good job in most areas—although not everywhere, so we want to learn from the pilots. Our commitment is absolutely to women. That is why gynaecology waiting lists are particularly targeted: we had 600,000 women on them. Women should feel really assured about the support that the Government are giving them and their health, to prioritise their health. We are keen to learn more about women’s health hubs. They will be different in different places because they have different populations, and that is entirely in keeping with the direction of travel of the Government.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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I thank the right hon. Gentleman for the work he does in this area. He does an excellent job and makes an excellent point. I do not know the detailed answer to that question—it is not directly my area—but I am very happy to make sure that we write to him.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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My hon. Friend makes a very powerful case and talks of an experience that he and his wife went through forty years ago, which highlights that it can sometimes take an unacceptably long time to get what is known as good practice through the system and to have that consistency for women and their families across the overall system. We absolutely need to ensure that maternity services understand best practice and that it is rolled out properly across the country.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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As I hope the hon. Gentleman knows, I think the health needs of women in Northern Ireland and the waiting lists there are particularly problematic, so finding out anything our Department can to do support or share learning across the United Kingdom is a personal commitment of mine. I will absolutely make sure that we do that. I am happy to meet, talk or even visit, which I always like doing.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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The hon. Gentleman can tell his women constituents what I hope everyone across the House will be able to tell their constituents: this Government inherited 600,000 women on those waiting lists, and we are committed—as said in our elective reform plan, which highlighted gynaecology in particular—to getting those waiting lists down from 18 months to 18 weeks in the lifetime of this Parliament.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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The hon. Lady makes the point about using targets. This is something that is a high priority, but it is not happening. That is absolutely why I mentioned it in my opening comments—to ensure that that happens.
30 Jan 2025 · Women’s Health Strategy · Hansard source
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My hon. Friend is right to highlight some tragic incidents, and I know she will be working hard on behalf of her constituents. We are absolutely committed to the women’s health strategy. Clearly, that will be taken forward as part of the 10-year plan, and it is an important part of that. I met my noble Friend Baroness Merron yesterday and the team supporting that plan to make sure that we understand how those key issues are taken forward. This is an opportunity, if I may, Madam Deputy Speaker, to say that the consultation on that plan is still open for ideas. We are keen to hear in particular from young people to make sure that we get a true representation. These sorts of things are not often consulted on, so we encourage young people and people who are suffering from depression and mental health issues to contribute their thoughts about the system they face as part of our 10-year plan consultation.
30 Jan 2025 · Doncaster Royal Infirmary · Hansard source
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I congratulate my hon. Friend the Member for Doncaster Central (Sally Jameson) on securing a debate on this really important issue for her constituents. Since her election, she has been a committed champion for Doncaster Royal Infirmary, and I thank her for her tireless efforts. She is absolutely right that the promises made by the previous Government were hollow and built on sand. Even for the hospitals that made it into the new hospital programme, the money simply was not there. They let down the people of Doncaster. On Monday, I had the privilege of visiting Doncaster Royal Infirmary, along with my hon. Friend and our hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher), and witnessed the outstanding care that staff are providing despite significant infrastructure challenges. I entirely agree with my hon. Friend’s comments about the situation, and about the pressure that the staff find themselves under. Staff and patients deserve better than a hospital prone to floods, fires and equipment failures, some of which I saw for myself on Monday. Doncaster Royal Infirmary now has a backlog-of-maintenance bill of approximately £114 million, and the constant need for critical repairs leaves scarce resources for developing and enhancing facilities. That is the reality facing Doncaster Royal Infirmary and hospitals nationwide after years of under-investment by the previous Government. Reversing the trend and repairing and rebuilding our hospital estate is a vital part of our ambition to create an NHS fit for the future. That is why the Chancellor announced that health capital spending is set to increase to £13.6 billion in 2025-26, representing record levels of capital investment in healthcare. I am pleased that works to address some of the most pressing issues at Doncaster Royal Infirmary are under way, with £19.8 million confirmed for the refurbishment and relocation of the critical care unit. That will deliver a safer and more accessible environment for the most vulnerable patients. Supporting projects are already in progress, including the relocation of the surgical same-day emergency care department. While I accept that this by no means addresses all the issues raised today, it is nevertheless a project that will deliver much-needed safety improvements. NHS planning guidance published today sets out the NHS’s operational capital envelopes, national capital programmes and allocation processes for 2025-26. I recognise that the guidance will be of interest to Members who wish to understand the impacts on their constituencies, but as we are here to discuss Doncaster Royal Infirmary, I will focus on the funding opportunities available for that hospital. The Government are backing the NHS with over £4 billion in operational capital in 2025-26 to empower local systems and ensure that funds are allocated according to local priorities. NHS England confirmed today that South Yorkshire integrated care board, which is responsible for Doncaster Royal Infirmary, has been allocated £107 million in operational capital to spend on its capital priorities next year. In addition to the annual operational capital allocations, the Government have allocated £750 million to an estates safety fund for 2025-26, which will focus on the worst safety risks across the NHS estate. South Yorkshire ICB has been allocated £19 million of that funding on the basis of need, critical infrastructure risk, estates incidents, and the recent maternity estates survey. Systems have been asked to prioritise their estate safety allocations to deliver maximum safety benefits locally. Their plans will be reviewed by NHS England and the Department of Health and Social Care to ensure that national and regional priorities are addressed effectively and schemes represent value for money. In some cases, estates safety funding may also be used to initiate multi-year schemes when that represents the most effective approach. I strongly encourage the trust to discuss options with the ICB for allocating some of its operational capital and estates safety funding to repairs at Doncaster Royal Infirmary. Let me also draw attention to the £1.35 billion of capital funding allocated for constitutional standards recovery in 2025-2026. Although it is not targeted directly at repairs, Doncaster Royal Infirmary may be able to benefit from some of the £24 million that has been allocated to South Yorkshire ICB to support its progress towards achieving constitutional standards for my hon. Friend’s constituents. I encourage the trust to explore possible options with the ICB that could address constitutional standards recovery as well as critical repairs, maximising value for money and, crucially, benefiting patients who deserve much better. The Government recognise that, like Doncaster Royal Infirmary, many hospitals across the country need funding to overhaul their digital infrastructure. That is why we are investing more than £2 billion in NHS technology and digital in 2025-26 to run essential services, increase productivity, improve cyber-security, enhance patient access, and ensure that all trusts have electronic patient records. I thank Doncaster and Bassetlaw trust for its co-operation on the implementation of a system-wide electronic patient record, and I want to reassure the trust that this investment in digital and technology will be available for projects beyond electronic patient records. The Government understand that long-term certainty about capital funding will be essential to addressing the critical infrastructure issues at hospitals such as Doncaster Royal Infirmary, and across the NHS estate. Capital budgets beyond 2025-26 will be determined through the current spending review, which concludes in June 2025. In conclusion, I thank my hon. Friend the Member for Doncaster Central for raising this important issue, and for her continued support, and that of her colleagues, for Doncaster Royal Infirmary. I extend my thanks to the staff of Doncaster Royal Infirmary for hosting my insightful visit, and for their candour in explaining to me how they have got into this situation in recent years. I hope to return when the new critical care unit is open. The Government are committed to repairing and rebuilding our hospital estate. It will take time—we have inherited a shocking situation—and I look forward to working with colleagues on this vital issue across the country in the coming years. Question put and agreed to.
27 Jan 2025 · A&E Services: Solihull Borough · Hansard source
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I congratulate the hon. Member for Meriden and Solihull East (Saqib Bhatti) on securing the debate, and congratulate other Members who have taken part in it. Let me start by thanking the NHS staff at Solihull Hospital for their remarkable efforts, stamina and care in the most challenging circumstances. That point was well made by the hon. Gentleman, and I know he feels passionately that he owes his own life and the lives of many others to their care. The hon. Gentleman said that he did not want to make political points and that politics was about choices, but we did inherit an NHS that was in the worst state in its history. I hope he agrees with Lord Darzi’s diagnosis; we have still not heard from his colleagues whether they agree with it. The condition of the capital estate, as well as NHS services, has shocked the country, notwithstanding the result of the election, but we are working at full scale to making that situation better. The hon. Gentleman is right that politics is about choices, and I think that the wrong choices were made in the past 14 years. It is right to point to the increasing demand for emergency departments in Solihull and elsewhere over the past decade, part of which can be explained by the appalling neglect of GP and primary care services to manage demand, and the failure of all parties—to which the hon. Gentleman alluded—to build consensus on a long-term solution for social care and support the flow of people through those hospitals. As the hon. Gentleman knows, Solihull Borough is within the University Hospitals Birmingham NHS Foundation Trust. In December, 58.2% of people were seen within four hours. Let me set out some of the wider context. We need to remember that we have had one of the busiest flu seasons for a number of years, and although the number of cases is coming down, the number of Norovirus cases is still 80% higher than it was in the same period last year. We want to end the treatment of people in corridors, which has become normal and which it is completely unacceptable. As my right hon. Friend the Secretary of State has made clear, this is not the level of care that staff want for their patients, and it is not the level of care that the Government will ever accept for patients. It will take time to return to the standards that patients deserve, but it can be done. We did it before in government, and we will do it again. To mitigate pressures in Solihull and elsewhere, we are reforming the NHS to shift the focus of healthcare out of hospitals and into the community, freeing up beds for emergency patients and preventing so many people from having to call an ambulance or go to A&E in the first place. In the last two months, we have announced steps to begin rebuilding general practice and immediate long-term action on social care. I understand that in November 2024, NHS Birmingham Solihull integrated care board had an average of 6.3 full-time GPs per 10,000 patients, just above the average in England, which stands at six. A few weeks after the election, we announced an extra £82 million of funding to increase access to GPs, and it is improving. Birmingham Solihull ICB area had 30 more GPs in November than in July, and I hope that that improvement has been felt by the hon. Gentleman’s constituents. In December we announced an extra £888 million in funding for GPs, the biggest funding uplift in years, alongside a package of reforms to bust bureaucracy, slash unnecessary targets, and give them more time to spend with patients as a first step towards bringing back the family doctor. As well as considering demand, we know that there is no solution for accident and emergency activity that does not include fixing our broken social care system. Today there are about 12,000 patients in hospital beds who have no criteria to reside but cannot be discharged. The main reason for the delays is to do with capacity. More than 300 patients in that category are in the Birmingham Solihull ICB. I hope that the hon. Gentleman and, indeed, all Members will work with us to resolve the situation, but that is why the Government are making up to £3.7 billion of extra funding available for local authorities to provide social care, why we are delivering extra 7,800 adaptations through the disabled facilities grant this year and next year, why we have delivered the biggest increase in carer's allowance since the 1970s—worth an extra £2,300 to family carers—why we are introducing fair pay agreements to tackle the 131,000 vacancies for care workers that we inherited, and why we are appointing Louise Casey to develop a national consensus on that long-term solution for social care. It is also clear that we can get our ambulance and A&E services working better, so before the spring we will set out the lessons learned from this winter and the improvements that we will put in place ahead of next winter. We are content to visit and hear from hon. Members from across the House about the situation in their areas. The hon. Gentleman talked about the 2022 Act. I was on the Bill Committee and tabled a number of suggestions for better accountability of ICBs to local Members of Parliament, most of which were not accepted by the Government of the time. I agree with him that those organisations need to be more accountable to him and to other Members of Parliament representing their constituents. We expect integrated care boards to ensure that the areas they run are safe, putting necessary care in the community, investing in technology and doing what is best for the people they are responsible for. The Government are investing an extra £26 billion in our health and care services while undertaking fundamental reform to help the ICB deliver the services that all our constituents expect. If the ICB intends to make substantial changes to the way it delivers services, it must conduct a public consultation and must meet the test to ensure that all proposals are proven to be in the interests of patients and the wider public. I know that the hon. Gentleman will be meeting the ICB in a few weeks, and I am sure that he will continue to make his points to it; I suspect that it is watching or listening to our proceedings. I am sure that he would agree that it is for the people locally in Solihull to determine how their interests are best served. Ministers cannot impose views above the heads of the local ICB. Those decisions are best made in Solihull by people who live in Solihull and not in Westminster. Therefore, what I can do—what the Government are doing—is give ICBs the means to deliver services while undertaking fundamental reform of how those services are delivered. The hon. Gentleman is therefore doing exactly what he should do as an experienced Member of Parliament and making his case to the local ICB. I am sure that it will have heard him this evening and that his voice will be important in representing his constituents. The hon. Gentleman was entirely right to raise population growth and planning, which was also mentioned by the hon. Gentleman’s neighbour, the hon. Member for Solihull West and Shirley (Dr Shastri-Hurst). We are committed to house building, unlike his Government; it is important that that goes ahead. That does put pressure on services. Unfortunately, under the previous Government, developments were not going ahead because of the issue of infrastructure. That is something that we are addressing. The disconnect between ICBs and local authorities must change—the situation with vital infrastructure such as schools and hospitals has gone on for far too long—which is why we are committed to working with colleagues at the Ministry of Housing, Communities and Local Government to ensure that planning includes basic infrastructure. The Secretary of State for Health and Social Care has regular meetings with the Deputy Prime Minister to ensure that we are all pulling in the same direction on that. Communities across the country, including the hon. Gentlemen’s constituents in Solihull, are struggling with poor services and crumbling estates. We are putting record capital funding into the NHS while reforming services to ensure that every penny of that money is spent well. We will return to 95% of patients being seen within four hours at A&E, we will get waiting lists back down to where they were in 2010, and we will fix the front door to the NHS with the GP services that all our constituents deserve. It will take time, but we will deliver an NHS and national care service that provide people with the care they need when they need it, and we will continue to work with all hon. Members across the House to ensure that that happens.
23 Jan 2025 · Rare Retinal Disease · Hansard source
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It is a pleasure to serve under your chairmanship, Dame Siobhan. I start by thanking the hon. Member for Strangford (Jim Shannon) for securing this debate on such an important issue and other Members for their contributions. Both the shadow Secretary of State and I are covering for other colleagues this afternoon, so hon. Members can imagine my joy when actual experts walked into the Chamber. The hon. Members for Leicester South (Shockat Adam) and for Torbay (Steve Darling), as has been said, bring great personal and professional expertise to this debate, so it was joyful to see them come in. It was good to hear from my hon. Friend the Member for Doncaster East and the Isle of Axholme (Lee Pitcher); the experience he brings through his wife is really valuable. My hon. Friend the Member for Battersea (Marsha De Cordova) has been such a champion of this issue both in her personal experience and since she came to the House. I understand that it is her birthday today, so I hope she is having a good time. She has brought great expertise to this place. I am going to do my best to answer the questions. I have been billed highly by the hon. Member for Strangford, and I am grateful for that. The Under-Secretary of State for Health and Social Care, my hon. Friend the Member for Gorton and Denton (Andrew Gwynne), will write to hon. Members about anything that is outstanding. I would like to take time to acknowledge the experiences of those living with rare inherited retinal diseases and their families, who I know will be paying attention to this debate. I pay tribute to all those who work tirelessly to raise awareness of rare conditions and bring about change. Although rare diseases are rare individually, their impacts are far-reaching. One in 17 people will be affected by a rare condition over their lifetime; that is around 3.5 million people in the United Kingdom. As the hon. Member for Strangford said, rare inherited retinal diseases affect around 25,000 people in the UK and collectively represent a leading cause of sight loss in working-age adults. We recognise the impact that these conditions have on patients, families and wider society and the need for innovative approaches to tackle these changes. The Government are committed to improving the lives of people with rare conditions. The hon. Member for Torbay used that quote about providing opportunity, support and determination for people. The UK rare diseases framework outlines four priorities to achieve this aim: helping patients get a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; better co-ordination of care; and improving access to specialist care treatment and drugs. In England, our annual rare diseases action plan sets out the steps we are taking to meet those priorities. We continue to make progress and are working to finalise our next England action plan for publication this year. It is vital that NHS patients with rare diseases are able to access innovative new treatments as they become available. That includes those with progressive retinal diseases, where early intervention is crucial to preserve sight. Under England’s action plans, NICE, the Medicines and Healthcare products Regulatory Agency and NHS England are working to understand and address the barriers to access for rare diseases treatment. The hon. Member for Strangford asked a number of questions about NICE’s approach that I hope I will cover. NICE does a difficult job well, in my view, and we think its approach is appropriate for the evaluation of treatments for rare diseases. NICE recommended 84% of medicines for rare diseases evaluated through its standard technology appraisal programme in 2023-24. That is comparable to its approval rate for medicines for more common conditions. Those treatments are now available for the treatment of NHS patients. NICE also operates a separate, highly specialised technology programme for the evaluation of a handful of medicines for very rare diseases each year that recognises the challenges of bringing treatments for very rare diseases to market. NICE recommended the gene therapy Luxturna for a type of inherited retinal dystrophy through that route. One of the recipients of that groundbreaking therapy on the NHS has spoken of his gratitude for the positive effects of the treatment on not just his vision, but his confidence and independence. NICE is also in the process of reviewing the criteria for routing topics to its highly specialised technologies programme, which the hon. Member for Strangford asked about. That review will ensure that future routing decisions are more transparent, consistent, efficient and predictable. As part of that process, NICE has launched a public consultation on its progress. I encourage the rare diseases community and hon. Members interested to continue to engage with that process. Research offers a way to accelerate access to new and innovative treatments. Through the National Institute for Health and Care Research, the Government support rare diseases research. There are currently eight active research projects on rare retinal disease funded by the NIHR, with a combined value of over £6 million. The NIHR also invests in infrastructure to support and deliver research studies. The NIHR Moorfields Biomedical Research Centre, which is dedicated solely to vision research, has made significant strides in the field of rare retinal diseases. By harnessing genomic data, the BRC has developed effective treatments, including gene-replacement therapies for inherited retinal disorders. The NIHR is also working closely with commercial companies to bring new medicines and technology to patients. To connect people living with rare diseases to innovative treatments and sources of support, we need to diagnose these conditions as early as possible. The UK is a world leader in genomic diagnosis. Patients in England have access to whole genome sequencing on the NHS. Advances in genomics mean that new causes of rare retinal diseases are being found every year. As part of Genomics England’s generation study, we are harnessing the power of genomic sequencing to screen for over 200 rare genetic conditions that can be treated in the NHS in early childhood to improve outcomes for babies and their families. That includes the rare retinal disease RPE65-associated Leber congenital amaurosis, which can be treated with Luxturna. A central mission of this Government is to build a health and care system fit for the future. The 10-year health plan will ensure a better health service for everyone, regardless of condition or service area. The plan will focus on our three shifts for a modern NHS: moving from hospital to community, analogue to digital and sickness to prevention. All three offer opportunities to improve time to diagnosis and care for people living with rare retinal conditions. The shift from analogue to digital will enable innovative uses of data to improve diagnosis and measure treatment outcomes, while NHS ocular genetics services’ use of video consultations continues to widen patient access to specialist advice, in keeping with the shift from hospital to community. Although many rare diseases are not preventable, early diagnosis, as we have heard, can lead to timely interventions that improve health outcomes. I will outline the treatment pathway for rare retinal diseases. I am thankful for the role played by high street optometrists, some of them here today, in helping to identify patients with sight-threatening conditions. There is good availability of NHS sight-testing services, with over 12 million free NHS sight tests provided to eligible groups annually, including children, individuals aged 60 and over, and those on income-related benefits. Optometrists are required to refer any patient showing signs of injury, disease or abnormality and integrated care boards have been asked to ensure that there are direct referral pathways in place between community optometry and secondary care. As the hon. Member for Leicester South said, the eyes are the gateway into other health conditions. Optometry has a very important role. As one of the busiest outpatient specialties with one of the largest waiting lists, we know that ophthalmology is facing huge challenges and we are working hard on how we can help to build capacity. NHS England is looking at how digital connectivity could improve the triage of patients referred between primary and secondary care. That would allow for images to be shared, and specialist advice and guidance could help to keep patients in the community where possible. We recognise the importance of access to emotional and practical support, especially where treatment may not be available. A diagnosis of sight loss will have a profound impact on any individual, who will be at increased risk of stress, anxiety and depression. NHS England’s patient support toolkit for eye care commissioners and providers aims to ensure that patients with ophthalmic conditions or sight loss are supported throughout their care journeys. The RNIB patient support pathway aims to strengthen that and ensure that support and guidance are available to patients from their first eye care appointment through to having a confirmed diagnosis, and then right the way through to living well with their condition. I know that the work of the all-party parliamentary group on eye health and visual impairment and of other hon. Members will help in giving those people a powerful voice. As we work towards building a health care service fit for the future, it is vital that people living with rare diseases are not left behind. With the UK rare diseases framework coming to an end in 2026, we will look to build on the progress made over the past five years, which the shadow Secretary of State mentioned. We will work with colleagues in the devolved Administrations, as highlighted by the hon. Member for Strangford. We have commissioned an evaluation of England’s rare diseases action plans through NIHR and will also be undertaking engagement this year to inform future policy decisions. The Government are deeply committed to working across the health and social care system and with the rare diseases community to improve the lives of those with rare conditions. Once again, I thank the hon. Member for Strangford for raising this important matter. It is good to have high interest, expertise and experience in this place. We want to work with colleagues here and we thank the rare disease community for their valuable ongoing engagement with us to bring about meaningful change.
22 Jan 2025 · New Hospital Programme · Hansard source
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I thank my hon. Friend; I am happy to take interventions, but I need to finish by half-past 4, so I am conscious of time. He is absolutely right, and I will come on to his point. We need to be very clear and honest with people about what was ready and about the different stages of these programmes, which we are very keen to do. Staff and patients deserve better. That is why the Secretary of State asked officials to review the programme and put it on a firm footing with sustainable funding so that all the projects can be delivered. I thank the hon. Member for Bexhill and Battle for his service to the NHS and his experience. I agree that it is appalling for staff. We all understand that he and I disagree in our political analysis, but he made some really well-informed points about models of care and future models of care, all of which we need to take into account in the delivery of this programme and other parts of the capital programme—and we will. As the Secretary of State announced to the House on Monday, we now have a realistic plan to deliver the programme. I am pleased that we can be honest with people as we start a new chapter setting out a new commitment to deliver these hospitals, which are so important to all our constituents, that is realistic and backed with funding. We have worked closely with the Treasury to secure five-year waves of investment, backed by £15 billion of investment over consecutive waves, averaging £3 billion a year. This will ensure a balanced portfolio of schemes at different development stages being delivered now and into the future. The new delivery plan sets out the order and the waves of investment in which each new hospital will be constructed. Hospitals included in a wave will begin construction, while forthcoming schemes will be undertaking pre-construction work to prepare planning permission and secure business cases. With this approach, we can ensure that schemes are ready to be built as soon as possible. A list of the schemes in each wave has been published on gov.uk and in the plan for implementation. For reference, I will briefly outline the timeline for delivery. [Interruption.] Actually, I think we have seen all the waves, and the hon. Gentleman wants us to move on to Bexhill and East Sussex.
22 Jan 2025 · New Hospital Programme · Hansard source
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I thank the hon. Gentleman for his intervention. We had a good discussion yesterday about North Devon; I understand the rurality of that location, as it is fairly close to my Bristol constituency. Obviously, however we manage it, there are a lot of schemes represented by a lot of MPs. I am open to suggestions about how we go forward. I hope hon. Members feel that we have tried to give as much information as we can to them and the trusts in the announcement and the meetings yesterday. That is the spirit in which we will continue.
22 Jan 2025 · New Hospital Programme · Hansard source
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I thank my hon. Friend for her intervention, which highlights the point that the hon. Member for Bexhill and Battle raised about other capital plans and programmes to help his constituents and others over the coming years. In conclusion, I thank the hon. Gentleman for raising this issue.
22 Jan 2025 · New Hospital Programme · Hansard source
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I thank the hon. Gentleman for that intervention. We learned a lot yesterday from the expert team from the new hospital programme; I thank them for their incredible work in getting to this point. Those colleagues who could make the meetings yesterday found that the team’s knowledge about every single programme was phenomenal. I have yet to ask the team a question about any scheme to which they do not know the answer—I give hon. Members that confident assurance. The team includes colleagues from both NHS England and the Department. When I went to an assurance meeting a few weeks ago, I learned that the relationship between the central control of the programme and the trusts, how we get the schemes delivered for everyone’s constituents, and the value of parliamentarians talking to me—everyone has stopped me in the corridors to raise these issues—are all very valuable. That is a good function of parliamentarians. That is the spirit in which we want to continue. Our commitment is to deliver these hospitals, including the Eastbourne district general, Conquest hospital and Bexhill community hospital schemes, and I am pleased to say that we have an affordable, deliverable plan to do so. It will be difficult, but I look forward to working with the hon. Member for Bexhill and Battle and other colleagues.

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