Jim Shannon MP: speeches 2024

Speeches

• 11 Dec 2024 · Dental Healthcare: East Anglia · Hansard source

  More

  On that critical point, dental care must start in primary school. When I was at school—that was not yesterday, of course—they came in to check the children’s teeth. We had that the whole way through, but that process is missing today. Does the hon. Gentleman think that primary school should be the first stage of response?

• 11 Dec 2024 · Violence against Women and Girls · Hansard source

  More

  It is up to you, Mr Speaker, but you always call me; you are very kind. Thank you. Tackling violence against women and girls can be done regionally, but is it not time to do it on a national level, with England, Scotland, Wales and Northern Ireland working together?

• 11 Dec 2024 · Violence against Women and Girls · Hansard source

  More

  Thank you, Mr Speaker.

• 11 Dec 2024 · Responsibilities of Housing Developers · Hansard source

  More

  First, may I say that it is a pleasure to speak in this debate? I thank the hon. Member for Keighley and Ilkley (Robbie Moore) for setting the scene. The UK is screaming out for new homes for large families, small families, single people and first-time buyers. I am fortunate to have a first-class working relationship with numerous developers in my constituency, and I think that that makes a difference. Whether it is Fraser Homes, Hagan Homes, Dunlop Homes or Rock Developments, I support them and they support me. In the constituency of Strangford, they have helped transform the towns and provided forever homes to so many people. I want to see urgency in the planning process, which clearly is not there. There is an issue with the adoption of roads and footpaths. In Northern Ireland, we insist on developers providing a bond. Should they go bust, that bond can be used to finish the roads, footpaths or drainage system. But as costs have risen, as they clearly have, there is a need to have a bond that is satisfactory. That is the first thing. The subject of snag lists comes up all the time. When residents move into their newly developed house, they want it all to be perfect, but suddenly it is not perfect, because there are snags that need to be addressed: cracks in the walls, unfinished woodwork, plumbing, electrics and perhaps subsidence. Communication is a large part of addressing those snags, so developers need to tighten up in that regard. An effort must be made with buyers and third-party organisations to ensure that processes are done and that local planning, the Department for Infrastructure back home, private developers and purchasers—

• 11 Dec 2024 · Financial Inclusion: Rural Areas · Hansard source

  More

  I commend the hon. Lady for securing this debate. Unfortunately, in my Strangford constituency, 11 banks have closed, I think, so the impact on rural dwellers is very real. Does the hon. Lady share my concern? If people do not have a bank or the face of someone to talk to, what do they end up doing? They can look towards unregulated moneylending and not receive the appropriate financial advice that they need. With that being the case, the banks and the massive profits they make mean that the ordinary person is suffering even more.

• 11 Dec 2024 · Rail Services: Devon · Hansard source

  More

  I commend the hon. Gentleman for highlighting this issue. At Christmas, rail and bus services are a massive problem. The alternative is extortionate prices for taxis, which are just not sustainable for the ordinary man or woman on the street. Does he agree that there is more the Government could do, alongside the rail and bus companies, to improve public transport services for those who depend on them late at night, for their employment or for leisure activities?

• 11 Dec 2024 · Puberty-suppressing Hormones · Hansard source

  More

  I very much welcome the Secretary of State’s statement. It is never easy to deliver a policy decision that has so much effect on people, and I admire him for his diligence and his courage. He will be aware of the findings of the Cass report, which found that the change in practice from psychological and social support to drugs was based on no good evidence. In the light of medical professionals highlighting that puberty blockers by definition disrupt a crucial natural phase of human development, does the Secretary of State believe that we must extend the ban from temporary to permanent, not only to protect our children, but to prioritise mental health and the support that they so desperately need?

• 11 Dec 2024 · Nationally Significant Infrastructure Projects and Local Road Networks · Hansard source

  More

  I commend the hon. Gentleman for bringing this debate before the House—I spoke to him beforehand, and other Members have added their input as well. While the planning system in Northern Ireland is devolved and operates very differently from that on the mainland, he will know that significant infrastructure projects can take years of planning to-ing and fro-ing and do not always involve communities in the way that they should. Does he agree that community involvement and streamlining the process of delivering necessary projects are important, in order to take in and encapsulate the entirety of this great United Kingdom of Great Britain and Northern Ireland?

• 11 Dec 2024 · Nationally Significant Infrastructure Projects and Local Road Networks · Hansard source

  More

  Will the hon. Gentleman give way?

• 10 Dec 2024 · Rare Autoimmune Rheumatic Diseases · Hansard source

  More

  I thank all hon. Members for their contributions. I refer first of all to the hon. Member for Bootle (Peter Dowd). It is always a pleasure to hear him make his contribution. Even when there are things that are said in other debates which I may challenge, he always delivers his contribution in a lovely way and not many people can do that. Today he delivered something that we all agree with. I thank him for that and I mean that sincerely, but he knows that. He referred to the effect upon the family. He is right, and also right that those who want to work are not able to. He said he did not want to see these diseases at the back of the queue and he is right on that as well. All those things are pertinent to the debate. My hon. Friend the Member for East Londonderry (Mr Campbell) referred to awareness and training. Again, a very salient intervention for which I thank him. The Minister is right that there is no better way of telling a story than giving an example, and the hon. Member for Mid Sussex (Alison Bennett) told of her good friend, Carrie, and the effect upon her and upon her mummy as well. Sometimes they were wondering what it was all about when the condition worsened, and how the health service responds is critically important. The shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans), brings to any debate his wealth of knowledge—from his own personal experience and from his vocation as well—and he does so sincerely. He referred to the two groups: those with tissue and those with vasculitis. He referred to the vision for the rare disease framework and the new action plan. I did not previously know about the tie-up between Birmingham, Newcastle and Queen’s University Belfast for research and development and I was really interested to hear about it. I know about some of the things Queen’s University do but I did not know about that specifically and so I thank him for that, and for the wee reminder of how to get onto that as well. That has really been helpful. I am encouraged by what I have heard today. I referred to research networks and support, and working collectively to make this situation better. Disease modification drugs need to be regulated. This is a wee reminder of some of the things to be done—it is not always straightforward by the way, either. This debate was never about me or about any of us here. It is about patients and our constituents; about those who we serve in this place. Today I think the Minister has developed a very positive response. All of those out there—my constituents, and those of the hon. Member for Mid Sussex and of the hon. Member for Hinckley and Bosworth—will be encouraged, because they will be listening to this debate and they will want to know what the Government are going to do. They will be encouraged by the things the Minister referred to: highlighting the rare diseases, the personal stories, to raise awareness. That the diseases are rare but collectively they are common was a salient and poignant comment. On measuring and reporting progress, he referred to the 2026 end of the framework but the Minister gave us assurance—he referred to a mission and to contacting the four nations so they can approach it together and commit together. I think that is also an answer to one of the questions I asked. That is what the Minister has committed himself to doing and we should be reassured by that. Diagnosis should be timely and accurate, and the Minister referred to GeNotes and the digital improvements. That is really important as well. He also referred to NICE, to encourage research and development for rare diseases because we have to look forward to someday hopefully finding a solution. He also referred to the ENRAD, which is a good model for all to follow. Government will put this idea to the fore, where there has been a good example. The Minister is right about the economic and health commitment for clinical trials, so that our patients win each time. He also made encouraging comments about training and workforce—early prevention, faster diagnosis, better outcomes. I think those who have rare diseases—170,000 across this great United Kingdom of Great Britain and Northern Ireland, and all the families of those people—will today be encouraged by this debate and the contributions from all sides. Most importantly, I say a sincere thank you to the Minister. Question put and agreed to. Resolved, That this House has considered rare autoimmune rheumatic diseases.

• 10 Dec 2024 · Rare Autoimmune Rheumatic Diseases · Hansard source

  More

  As my hon. Friend often does in these debates, he brings forward a reminder of why this debate is important and why we need to raise awareness. It is about giving confidence to people out there who may have these diseases and may think that they are fighting this battle all on their own, but are not. We need to raise awareness among NHS staff. It is impossible to know about every rare disease, but it is good to recognise the symptoms and to be able to point people in the right direction. Rare autoimmune rheumatic diseases are a range of chronic, currently incurable conditions in which the body’s immune system damages its own tissues, often in multiple organs throughout the body simultaneously. That is a lot of words but, to use a phrase that we would say back home, it means that they come at a person from all sides. They can lead to tissue or organ damage that, in some cases, can be fatal. We cannot ignore the fact that that can be fatal and the importance of responding in a positive fashion. At present, the outcomes are not good enough for people living with rare autoimmune rheumatic diseases: they wait too long for a diagnosis, have variable access to specialist care and cannot always access help and support when they need it. In any debate that we have about ill health, we often say that early diagnosis is important, but so is having access to specialist care. It is important that NHS workers are able to notice something that may be unusual and not something that they see every day. It is also important that the care, help and support that people need is available when they need it. Preliminary data from the Rare Autoimmune Rheumatic Disease Alliance’s soon-to-be-released 2024 patient survey found that the average time to diagnose from symptom onset was two and a half years—it is that long before anything happens. In those two and a half years, people suffer, worry themselves sick and wonder, “Am I going to get out the other side?” The data shows that 30% of patients waited five years for a diagnosis from symptom onset. Rare autoimmune rheumatic diseases impact on around 170,000 people in the United Kingdom of Great Britain and Northern Ireland. Hon. Members may not recognise some of the diseases, but they include Behçet's disease, lupus, myositis, scleroderma, Sjögren’s syndrome and vasculitis. They can affect many parts of the body—the joints, the skin, the lungs, the kidneys or the heart—and often require cross-medical expertise. That is just a small number of the things that come the way of 170,000 people across the United Kingdom. Unlike the vast majority of rare diseases, the conditions occur predominantly in adult life and are predominantly non-genetic. That means that people do not need to have a history of them: they can come out of the blue. The Rare Autoimmune Rheumatic Disease Alliance, a group made up of clinicians and charities, such as Lupus UK, Vasculitis UK, Scleroderma & Raynaud’s UK and Sjögren’s UK, has set out a number of key solutions to improve care for RAIRDs. They include strengthening existing specialised networks and setting out what good care looks like through a rare disease equality standard. It has also stressed that it is vital that rare disease is not forgotten in upcoming policies such as the NHS’s 10-year plan, which I will refer to later. In that plan, it is really important that we—by which I mean the Government and the Minister—can give hope to people who suffer from those diseases, and it is really important that they do not think they are on their own. The evidential base response from the Minister would give them that assurance, and it is important that the progress made to date by the UK rare diseases framework is built on. That is my first question: is the rare diseases framework part of the NHS 10-year plan? I want to share an example that has been highlighted to me of someone who has felt the personal impact of rare autoimmune rheumatic disease. Zoi lives with a life-threatening RAIRD, granulomatosis with polyangiitis vasculitis. In her words, she is “lucky” because she had a relatively short journey to diagnosis. When she looks at others, she thinks she is lucky. I would like everybody who suffers from these diseases to have the same luck—if luck is the word. I do not believe in luck; my personal opinion is that everything is predestined. I am interested in how we make it better. The quick diagnosis came only because Zoi’s GP recognised her symptoms and knew to refer her right away. Does every doctor have that knowledge? I hope they have, but they might not have the personal observation of that doctor. The difference was that he had had a friend who had died of the disease, so he knew what to look out for and red-lighted those symptoms. Despite Zoi’s positive experience of diagnosis, however, her experience of care since has been variable—that is the second stage. Following diagnosis of the disease, the care system works its way out. She has faced long waits for appointments and poor communication between teams responsible for her care. In one instance, she received a letter from a consultant four months after the date of the appointment. Was that the fault of the Royal Mail? I do not know. It was not Zoi’s fault that she did not know about the appointment until it was too late. It meant that she had been taking a medication unnecessarily for months longer than needed. It is about early diagnosis, treatment going forward and speed and urgency in the process to make it happen. Zoi works for a charity that supports other people living with vasculitis. She describes it as “heartbreaking” that hers is one of the best diagnostic journeys one will hear of. She has been diagnosed and gone through the NHS process to get out the other side and try to be better. As she says, hers is one of the best diagnostic journeys, but how can the rest be improved? How do we improve care? Speedy diagnosis should not be down to Zoi’s word “luck”. People such as Zoi living with serious rare diseases should be able to access vital care when they need it. That is why I am calling on the Minister to consider the following recommendations advocated by RAIRDA. It is important to be aware of the issues. The first recommendation is to ensure that rare diseases are a focus of the NHS 10-year plan. I am always pleased to see the Minister in his place. I mean that genuinely, not to give the Minister a big head. He comes with an understanding that we all greatly appreciate— I do and am sure everybody else does. Will there be a focus in the 10-year plan on rare diseases? I am pretty sure the answer will be yes, but we need confirmation of that in Hansard today. We need to reassure our constituents who are struggling with disease and are unsure what the future means for them. The UK rare diseases framework, introduced just three years ago in 2021, has been a significant step forward in securing equity of treatment for rare diseases. I welcome that, but sometimes the system does not work as well as it should. It is crucial that the Government do not lose sight of the work done to date to drive change for people living with rare conditions. Good work has been done, and I always like to recognise good work. It is important that we give encouragement to those who are working hard, and it is important sometimes to think, when we are ploughing away, what we are getting for it. Many of us—all of us in this room, for instance—appreciate what our NHS does. The good work that has happened for those with rare conditions needs to continue with the same zest, enthusiasm and fervour as it has done in the past. It is particularly important that the working groups on the NHS 10-year health plan consider how improvements in rare disease care will be championed in that plan. In addition, it is important that the plan considers how the work plan of the UK rare diseases framework will be continued past the framework’s end point in 2026. That is my second ask. I am sure that within the 10-year plan the Government are committed to that continuation, but I need to personally reassure my constituents and we need to reassure the nation. We need to reassure those 170,000 individuals and their families and friends. The framework has been an important tool in co-ordinating methods to improve care for rare diseases, and not just in England. I understand that health is a devolved matter, but this is how it works: whatever happens here, health-wise, is the next stage for us back in Northern Ireland, through the Health Minister. I was talking to another Health Minister on the tube coming here, and we were saying how important that co-ordination across all four regions is. It is good to push for that here, and to see it received back home. The framework has been an important tool in co-ordinating methods to improve care for rare diseases, not just in England but across the United Kingdom of Great Britain and Northern Ireland. The numbers of people suffering in Northern Ireland may seem small numerically, because we are a region of 1.9 million people, but the impact is huge. I am overtly aware that health is a devolved matter, but I am also aware that the standard can and should be UK-wide. The Minister always gives me and those from other parts of this great United Kingdom reassurance on the co-ordination between here and the Northern Ireland Assembly. I know he has met the Health Minister, Mike Nesbitt, and I am sure they will meet again in the foreseeable future. How do we develop a standard of care? The National Institute for Health and Care Excellence quality standards consist of defined, measurable statements that can be audited to reduce variations in cases throughout the country. A rare disease quality standard would help to incentivise an increased focus on delivering high-quality care and treatment for rare conditions in the NHS, including rare autoimmune rheumatic diseases. That is my third ask: to develop the standard of care we need to have a quality standard, which would help to incentivise all the regions—all the parts of England, Scotland, Wales and Northern Ireland collectively; better together. Work in this area is already well under way. RAIRDA has been working hard with organisations across the rare disease community to understand what good care looks like for people living with rare disease, and how that should be reflected in quality statements. Has the Minister had the opportunity to talk to the alliance? I am sure he has; I do not doubt that for a second. It would be good to have that liaison to help to bring together the ideas from the alliance and the Government. It is important that the current work to develop quality statements is built on in a timely way, with the swift development of a rare disease quality standard. On my fourth request, it is clear that we need development in IT capacity in the fight for diagnosis, to ensure that more people can experience a quick diagnosis, like Zoi did. We need to increase funding for research into the diagnostic journey for rare autoimmune rheumatic diseases, to aid the development of diagnostic technology. It is really important that we look towards the next stage on research and development. How do we do that? To sidestep slightly, today’s paper—I think it was the Express —said that the Government should be doing something to look at dementia as the numbers rise. Although we are talking about rare diseases that will be well down the Government’s to-do list, early diagnosis is important, as is research and development to improve the capacity to find a cure, to lessen the pain and to lengthen the time that people have in this world. Again, any indication of what is happening with research and development would be greatly appreciated. Investment in research would help to identify blockers to rapid diagnosis, as well as supporting the development of digital tools for faster and more accurate diagnoses. Some months ago my colleague, the hon. and learned Member for North Antrim (Jim Allister), asked the Secretary of State for Health and Social Care a question in the Chamber about the report on the way forward for the NHS. He mentioned the need for digital data tools, and the Secretary of State replied very positively, so I think the Government are looking into this, but it is important that we have the digital tools in place. With better data and more accuracy, we can help to speed up the process and find a better way forward. Because of their rarity, it is unrealistic to expect every hospital to have clinicians with expert knowledge of rare autoimmune rheumatic diseases. I understand that, as we cannot know everything. Clinicians may have a small portion of knowledge, but this subject requires expert knowledge, so we need another way of doing it. A 2024 survey found that 29% of respondents were not very, or not at all, confident that the specialist healthcare professionals providing their care understood their condition. How do we improve that? I understand that we are in difficult, financially straitened times, and the Government have rightly committed a large sum of money to the NHS and health services—as they should, and I support that entirely—but we need improvement. My fifth ask of the Minister is: how can we do better? If 29% of respondents are not very confident, or not at all confident, we need to address that. I believe that improvement can be achieved by developing specialised networks for rare autoimmune rheumatic conditions. Such networks would allow health professionals to access the knowledge and expertise of tertiary specialists, while also developing the capability and capacity to provide more care and treatment locally. I feel that would be the answer to my fifth question, and I am interested to hear the Minister’s thoughts. Networks already exist, with an excellent example being the Eastern Network for Rare Autoimmune Disease, established in 2016. We have a system in place, so let us look at it—not in a judgmental way—to see what it is doing and where improvements can be made. The network was formed to maximise patient access to relevant expertise while keeping their care as close to home as possible. This has been achieved by setting up excellent communication and cascading training to enable much better co-ordination, digital data sharing and contact between specialised centres and local trusts. The network lead has calculated that the network’s creation has saved the NHS money, so it has to be considered. The network runs at a cost of between £70,000 and £100,000, but it has generated annual savings estimated at between £150,000 and £200,000. That means that for every £1 spent, the NHS has saved £2, over a seven-year period, through a reduction in the use of inappropriate high-cost drugs. On my sixth ask, networks throughout the country, like ENRAD, are run on the good will of clinicians. That is not sustainable, and it never can be. I respectfully ask the Minister to perhaps look at the ENRAD scheme, which is run on the good will of clinicians and has been very effective in how it responds, to see how such networks can be better helped to expand. If it saves money—if every £1 saves the NHS £2—then the financial equation is clear, and it should be pursued across all of this great United Kingdom of Great Britain and Northern Ireland. To address this issue, the Government must provide the necessary financial support for networks to be developed and maintained. That funding would enable the creation of vital posts, such as meeting co-ordinators, and allow clinicians to be reimbursed for their time. Again, I feel that would be the right incentive. Good will is good to have, and there is much of it across this great nation, but, at the same time, there may be better ways of doing things. Such support would ensure that benefits for patients, and the NHS’s budget, could be realised throughout the country. With the £25.3 billion committed to the NHS—I think that is the figure, but the Minister will correct me if I am wrong—this is another way to save money in the NHS, and it really should be done. My last request is about specialist nurses, who can play a crucial role in supporting people living with rare autoimmune rheumatic diseases. The preliminary results from the 2024 survey show that respondents with access to a specialist nurse were more likely to report that they had access to enough information and support about their condition, compared with those who did not have any access to a specialist nurse. But less than three in 10 respondents—some 28%—had accessed information from a specialist nurse, and this varied widely by condition group. Wow: how important is the role of specialist nurses? I would be reassured if the Minister came back to me in respect of the critical role they play, perhaps exclusively. If only 28% of people have access to information from a specialist nurse and it should be more, what can be done to improve that? Finally, when developing the NHS workforce plans, will the Minister consider what more can be done to recruit more specialist nurses to support people with rare autoimmune rheumatic diseases? We must always consider the fact that although the chances of getting a rare disease may be one in 10,000, the reality is that the patient deserves all the help we can offer, from diagnosis to treatment and support. I ask the Minister—very kindly, sincerely and humbly—to clarify whether that is this Government’s goal. I believe that it is, but it is not about me today; it is about the people we represent in this House, collectively, together, across this great nation. I believe we have an important role to play. RAIRDA, with all the clinicians and all the charities, has brought together some positive ideas that can help us together. This is not about blame—it is is never, ever about blame; it is about how we do it better. On behalf of my constituents who have contacted me, and others who will speak shortly, and for the shadow Minister and the Minister, we put forward our case and look forward to support from Government.

• 10 Dec 2024 · Rare Autoimmune Rheumatic Diseases · Hansard source

  More

  I beg to move, That this House has considered rare autoimmune rheumatic diseases. It is a pleasure to serve under your chairship, Dr Huq. I have done so many times, and it is always a pleasure to be here and to see you fully in control. It is also a pleasure to see the Minister in his place. I was hoping that it would be this Minister, so when he walked through the door, I was especially pleased to see him in person. By the way, I would have been pleased to see any Minister—I do not want to offend anybody. The shadow Minister, the hon. Member for Hinckley and Bosworth (Dr Evans), is in his place as well. He and I talked last night about this issue. This debate is, by its very nature, a niche debate. Dr Huq, if you have a constituent who has an autoimmune rheumatic disease or you know somebody with one, you will be here to represent them, but not everybody has, because only a small number of people across the United Kingdom of Great Britain and Northern Ireland have one of these diseases. However, I look forward very much to having the debate. I was chatting beforehand to the Liberal Democrat spokesperson, the hon. Member for Mid Sussex (Alison Bennett), and she was telling me—she will refer to this herself when the time comes—of the important case of her constituent, a good friend. I will leave it to the hon. Lady to put forward that case. I have always had a deep interest in any health issues. I am my party’s health spokesperson, and if there are any health debates anywhere, in Westminster Hall or in the main Chamber, I make it my business to attend those debates and to contribute to them, whether by speeches or questions. That is really important. I have a particular interest in rare diseases, and that came through a constituent who lives down the Ards peninsula. I have probably known him all his life. When you get to my age, Dr Huq, there are many people you have known all their lives; that is just a fact. The point is that he married a young girl from the area. She had a rare disease, and my interest came through contact between her and the family and me across the Ards peninsula. Across Strangford, this became a massive issue, and that lady and that family today fly the flag for rare diseases in the Ards peninsula and in Strangford. I thank the Backbench Business Committee for granting this debate. I think we start from the NHS point of view. I am an advocate for the NHS—always have been and always will be—as we all are in this House. I am one who believes in the foundation of our NHS and the people who hold it together—the people whom we may not meet, but who are the glue and the gel that keeps it going and keeps it together. I am aware of the stress and strain on the NHS, and give my full support as the Government attempt to make the changes that are necessary for the NHS to survive. I very much welcome the Government’s commitment. I think they have committed £26.3 billion to the NHS, and that is a massive contribution. It shows confidence on the part of the Government; we welcome that. My starting position is praise for the people behind those three little letters, N-H-S. We are beginning to look at NHS restructuring—the Secretary of State has confirmed that, and the Ministers are all committed to it. There are lots of priorities that the Government have to get to, but amongst that is the restructuring. A vital component is that the NHS provides high-quality, equitable care for all people, regardless of how rare or complex their condition is. If you—when I say “you”, Dr Huq, I really mean me or anyone else across the United Kingdom—do not have a rare disease, you may not understand what it means to have one, and how rare or complex a particular condition is, but that tells me that we need to be aware of this issue. We need to reach out and we need to help. The Government have a commitment to rare diseases as well. Although they may not be mathematically or statistically numerous, they represent individuals, families—relatives—and friends, who all understand the issue very well. I have been interested in rare diseases since I was in the Northern Ireland Assembly, before I came here. We had contact with ladies down the Ards peninsula who were very much aware of rare diseases and the issues, so we started a rare diseases group in the Assembly, which we have continued here over the years. I will use this opportunity to speak on their behalf about some complex, rare diseases—rare autoimmune rheumatic diseases.

• 10 Dec 2024 · International Human Rights Day · Hansard source

  More

  First of all, I commend the hon. Gentleman. In all my time in this House—he has been here longer than I have—I have always been impressed by his commitment to human rights issues. In every debate, he and I have been there together. I commend him for that, and put it on the record in Hansard. Does he agree that today we should not simply reflect on how far we have to go, but celebrate how far we have come? We should never grow weary of doing good, for in due season we will reap as we diligently sow. Those lovely words from the Holy Bible, which the hon. Gentleman and I both respect, must encourage us all to keep pressing, and keep winning the small human rights victories that literally save lives, grant education and preserve innocence for children.

• 10 Dec 2024 · Lobular Breast Cancer · Hansard source

  More

  My hon. Friend is right. We are fortunate that Labour has set aside £26.3 billion for the NHS. We have to recognise that commitment, and I hope the Minister will be able to tell us that money will be set aside for the very invasive disease to which my hon. Friend refers. ILC currently has no specific treatment and, for those who have been diagnosed, it behaves very differently from the more common type of breast cancer. As we look ahead to the next 10 years, it has been great to learn more about the Lobular Moon Shot Project, which has been supported by this Government, the last Government and hundreds of Members. Everyone in this room supports it, everyone in the Gallery supports it, and everyone outside this room supports it too. The project was set up in 2023, which is fairly recent. At my age, the years go incredibly fast, but 2023 feels like yesterday. The project seeks to lobby the Government to secure the research funding needed to understand the biology of lobular breast cancer. The project has stated that a major research package is estimated to cost some £20 million over five years, but it has not been prioritised as it should have been. I reiterate what the hon. Member for Dulwich and West Norwood said, and I ask that the research is prioritised. The Minister may not be able to tell us about everything that is happening, but we need to hear that commitment. Some fantastic charities undertake amazing work to support those living with breast cancer, and I have met them both in Westminster and at home in my office, and their work is instrumental in helping people to cope with the physical, mental and emotional side of dealing with a cancer diagnosis. One person will have the cancer, but their family and friends are also affected, as the hon. Lady said. With this type of cancer, there is a risk of recurrence or spread. Up to 30% of early-stage primary patients will experience spread to their organs, which can be a number of years after the initial diagnosis. This highlights again the need for greater research and funding to ensure early detection and to prevent the cancer’s spread. The shadow Minister spoke in a debate this morning about research undertaken between Birmingham University, Newcastle University and Queen’s University Belfast. He was talking about rare autoimmune rheumatic diseases, but Queen’s University Belfast has partnerships with other organisations to try to find cures for cancer. Many universities across this great United Kingdom of Great Britain and Northern Ireland are carrying out research, and the Government’s approach to that is vital. I have gone on a bit longer than I had hoped, but there is more work to be done on researching most cancers. Breast cancer, and specifically lobular breast cancer, impacts the lives of thousands of people every year. It is time to do more as a collective. Today, collectively, Members on both sides of the Chamber are committed to trying to find a cure and trying to find hope for those who have cancer, and who will hopefully survive it, and for their families as well, by undertaking the important research into this awful disease. We are also committed to making men and women across the country aware of the warning signs. I look to the Minister and her Labour Government, which is my Government—whether you are a Labour person or not, it is our Government and they are trying to do the best they can, and I think they deserve support for their commitment to do so—with sincerity and honesty, perhaps beseechingly, to ensure that the devolved nations are not left behind in terms of a strategy. I look forward to action from the Minister and to her replying to all the requests.

• 10 Dec 2024 · Lobular Breast Cancer · Hansard source

  More

  It is a pleasure to serve under your chairship, Ms Vaz. I thank the hon. Member for Dulwich and West Norwood (Helen Hayes) for her story on behalf of her dear friend and for leading the debate. We have been very privileged to hear contributions from courageous hon. Ladies to my right and to my left, who have told their own personal stories, which contribute to this debate. It probably also humbles us to have those contributions. Every person who has come here today to make a contribution will have an example of someone they love who has been affected. Westminster Hall is a great place, as the Chamber would be, to raise awareness and to discuss these matters. I am sure that many will not be fully aware of this insidious brand of cancer, or of its specifics. I am personally grateful to be able to give one example, but also to discuss these issues. As my party’s health spokesperson, these issues are incredibly important to me. Indeed, they are important to us all; we are all here for the same purpose and it is vital for us all to be here. I know that we will all have had some journey experiencing cancer within our family or close to home. Not long ago, I met in my office a constituent of mine who was diagnosed with lobular breast cancer. I think that, whenever we meet someone who has come through that journey and thankfully is on the other side and alive today, we thank God, as the hon. Member for Maidstone and Malling (Helen Grant) did. Ultimately—I say this respectfully to everyone here —that is where the power lies for healing: with our God. The hon. Lady explained that there is not enough research into the specifics of this cancer, let alone more access to medication that lessens the impacts of the suffering. Perhaps the Minister will have an opportunity, through civil servants, to check what research and development there is on this specific lobular cancer to help save more lives, make lives better and give people hope for the future. Ultimately, in this House, we are tasked to give hope—not because of our words, because our words are not important—to those out there who face this reality of what the future will hold for them. Invasive lobular breast cancer is the second most common type of breast cancer. It is also known as invasive lobular carcinoma. Around 15 in every 100 breast cancers are invasive lobular breast cancer. The most recent figures show that, in 2016, 6,765 people were diagnosed with lobular breast cancer in England, including 6,754 women and 11 men. There may be those who think that it is not a disease that can affect men; but although it is a very low number, it still does. My hon. Friend the Member for Wokingham (Clive Jones) is one of those survivors. I think we should thank God that he is here today as well. It is important to note that, although it is less common for men to get this form of cancer, they are still able to get it and it can impact them just the same. There were 7,566 cases of female breast cancer diagnosed during 2018 and 2022 in Northern Ireland. On average, there were 1,513 cases per year. I want to put the figures and stats on record because they illustrate clearly how critical, dangerous and invasive this cancer can be. In Northern Ireland, the breast cancer incidence rate was 156.7 cases per 100,000 females. The odds of developing female breast cancer before the age of 85 was one in eight. It is clear that there is a major concern in Northern Ireland and throughout this great United Kingdom. This specific type of cancer often goes undetected, as it spreads in straight lines, as opposed to lumps. Furthermore, although the cancer grows slowly compared with other cancers, the tumours can be large by the time they are detected. In addition, some 3.75 million people will be diagnosed with this cancer in the next 10 years, which is why it is important to discuss it, so I thank the hon. Member for Dulwich and West Norwood for securing this debate.

• 10 Dec 2024 · Lobular Breast Cancer · Hansard source

  More

  The hon. Lady brings forward a very personal story. In this House, we know that personal stories are always the hardest to tell, but the ones that have more impact. I commend the hon. Lady for what she is doing today. We would all say that, but we mean it.

• 10 Dec 2024 · Topical Questions · Hansard source

  More

  Only a couple of days ago, a prisoner was let out under the Government’s early release scheme. He was wanted for removing his GPS tag. What assessment has been made on the reoffending rates so far since the start of the scheme?

• 10 Dec 2024 · Cleve Hill Solar Park · Hansard source

  More

  I congratulate the hon. Lady on securing this debate. The issue of disruption is incredibly important. I have a number of quarries in my constituency, and I know only too well the damage and enhanced wear and tear that such sites can cause on smaller countryside roads—I do not know the hon. Lady’s constituency, but I presume that that issue will affect it as well. Does she agree that the road safety implications of heavy goods vehicle traffic using these roads over a number of years must be a priority for the construction company? The only way to address that is to have open communication with the local community and a point person to deal with issues as they arise. Has the hon. Lady been able to persuade the construction company to do that?

• 10 Dec 2024 · Prison Maintenance · Hansard source

  More

  I thank the Minister very much for that response. One story that has been quite prevalent in the press over the past two months has been the amount of mould growth in prisons, which will obviously lead to health issues. Will the new prison maintenance service that the Minister has referred to be able to deal with that specific issue? If it is not dealt with, it will lead to ill health among those who are in prison.

• 10 Dec 2024 · Storm Darragh · Hansard source

  More

  I thank the Minister for her positivity, and for her helpful answers; it is very clear that she is doing her best to make things better. I put on the record my thanks to all emergency service workers across this United Kingdom of Great Britain and Northern Ireland for their sterling efforts. Storm Darragh saw the cancellation and delay of numerous trains and flights across Northern Ireland and, further afield, across the United Kingdom. Although that cannot be helped, thousands of people were at a financial loss due to the cancellations and delays. What steps will the Minister take to ensure that airlines and rail companies across the United Kingdom of Great Britain and Northern Ireland do their bit to ensure that due compensation is paid to constituents, and that they do not lose out due to the weather conditions?

• 9 Dec 2024 · Planning Committees: Reform · Hansard source

  More

  I thank the Minister very much for his answers. He has put forward some very positive ideas to advance housing development, and that must not be ignored by anybody in this House. Has he had the opportunity to have any discussions with the devolved Administrations, bearing in mind the UK-wide need for reform of planning, no matter where it is, to allow for affordable housing, business premises, expansion and, vitally, the need to increase and attract manufacturing production capabilities for our economic growth and community standards, and to restore confidence for home ownership?

• 9 Dec 2024 · Terrorism (Protection of Premises) Bill · Hansard source

  More

  With great respect to the hon. Gentleman, this is not about fire regulations; it is about making sure that nobody dies, which is different. It is much, much more than fire regulations, which require people to check whether an extinguisher is working. This Bill is about making sure that nobody comes in to kill anybody, so it is a different scenario. I respect the hon. Gentleman, but we have to get a bit of focus. I am reminded of the community hall where the Rev. Robert Bradford was killed. The caretaker was on the door when the IRA came. They shot the caretaker and the reverend, and his plaque is at the back of this Chamber. I am ever mindful of his courage and the stand that he took. These are the things that we deal with. We are not better than anybody else, but these are the things that we have faced down the years. I want to focus on churches. On Second Reading, I spoke about Northern Ireland’s unfortunate experience of these matters, and about the need for churches and places of worship to have a plan in place. I made it my business to go and talk to my churches and to get their thoughts. They want to be part of the process, so we need to see how we can help them. I note that a few of my questions have been asked by other hon. Members, so I will restrict my remarks to churches’ questions about their roles and responsibilities. I ask my questions constructively. On new clause 2, which I understand will not be moved tonight, I have spoken to a number of churches and key holders in my constituency, and they have all told me that they include terrorism plans in their annual child protection training, which they undertake at their own cost. Those are massive steps for people who may have faced some of these things in the past, but who suddenly find themselves thrown into the cauldron because of where they are. One church highlighted that it ran a special awareness event after the Southport atrocity in recognition that the church hall, where most of the adults gather, is a different building from the one used for church events. I just want to understand how the process will work. This hyper-awareness is good as long as it is not driven by fear. I want to focus on that fear. I think it was the hon. Member for Hamble Valley (Paul Holmes) who referred to the fear that some people experience on these issues. In church services and meetings, where there are children and elderly people present, or in community group meetings, we do not normally have to deal with these things, but now we have to, because it is important. The legislation is important. That is why the Minister is bringing it forward, and why the House will support it. We need to ensure that the larger venues and churches have support, so that there is no fear—just a plan of action. People can focus on the fear and become incredibly worried, or they can focus on a plan of action to ensure that if something happens, they can stop it. That is where I wish to focus. I will give the example of Queen’s hall in Newtownards in my constituency, which can hold about 300 people. The events that I have been to there are nearly all charity events. It holds charity events, church events and fundraising events for missionary organisations, and they all galvanise a lot of people and bring them in. My right hon. Friend the Member for East Antrim (Sammy Wilson) referred to the onus being on the organisations. I always try to be constructive, and I ask the Minister constructively what that will mean for how such places function, and how they will focus on looking after the people. I also ask for clarity on the help that churches can expect to receive on training, to ensure that they are compliant with the standard tier expectations. They are not saying that they will not do what the Bill asks. They will; that is not the issue. I am just thinking about how we can help those churches, charity groups and others to gain the experience that they will clearly need. Will funding be made available to the charitable sector for the provision of training and assistance? Will a dedicated professional be available to churches on this issue? Will they check that churches are compliant and have a fit-for-purpose plan of action? That is my request on behalf of the churches that have spoken to me. We must remember that churches can be largely self-governing, and the smaller churches outside the mainstream of the Presbyterians, the Anglicans, the Methodists and the Roman Catholics do not have bodies to break this down for them. I am asking on behalf of those smaller churches. I attend a smaller church—the Baptist church—but I am also thinking of the Elim church and the Brethren halls, of which my Strangford constituency has a great many, with large congregations. I make these queries in a constructive fashion, and I know that the Minister will give the answers, not just to me but to everyone in the House.

• 9 Dec 2024 · Terrorism (Protection of Premises) Bill · Hansard source

  More

  I look forward to the other contributions to the debate. Unfortunately, whether we like it or not, terrorist threats are now a way of life, be they lone-wolf attacks, aggression and poisonings by Russia, attacks by terrorist groups from across the world, or Iranian attacks on those who support a free Iran. Such attacks focus our attention on where we are. It is good to see the Minister in his place, and I look forward to his comments. I wish to be constructive in my comments, and I have a few questions to ask. Hopefully, the Minister can give me some reassurances. In Northern Ireland, terrorist attacks were the norm for some 30-odd years. I declare an interest: I served in the Ulster Defence Regiment for three years, and in the Territorial Army for 11 and a half years. Why is it that when my fellow soldiers in the Ulster Defence Regiment and my part-time colleagues the Territorial Army went to a restaurant or café, they sought out a place where they could watch everything that was happening? They could see who was coming in and who was going out, and they had an escape route, so that they could get out quickly. That was the life that we led. In this debate, we are asking our churches, our charities, our missionary groups and those who run community halls to consider things of which they have no experience. I am not saying that critically; I am saying it observationally, because I want them to be aware. When the gallant Minister got the call to serve in uniform, he answered it. I put on the record our thanks to him for doing that, which tells us a lot about the Minister and his psyche. I look back at some of the atrocities and I am reminded of the Darkley massacre, in which the Irish National Liberation Army burst into a church and killed a number of people who were attending—innocent people. Had it not been for the bravery of some of the people on the door, more probably would have been killed. I think of Tullyvallen Orange hall, near Newry, where the IRA killed a number of Orangemen, simply because they were Orangemen. The point I am making is that that was our life in Northern Ireland, and now we are asking our churches, our charities and other groups across this great United Kingdom of Great Britain and Northern Ireland to look at providing better security. We are asking people with no experience to do that—people who have never considered there to be any need to do so—but we are doing it for a purpose. We all support this legislation. I want to put on the record that I support it, and I understand the reasoning behind it. We were all incredibly concerned about the Manchester atrocity; it is an example of what we have to try to stop.

• 9 Dec 2024 · Terrorism (Protection of Premises) Bill · Hansard source

  More

  Will the Minister give way?

• 9 Dec 2024 · Terrorism (Protection of Premises) Bill · Hansard source

  More

  The hon. Member has made his point very well, and I am sure that the Minister will answer it. I just want to make sure that the churches, the charities, the missionary groups and the community groups across this great United Kingdom of Great Britain and Northern Ireland are able to meet, and that they get the necessary help to ensure that normal life continues. The churches all need to know what to do and when. It took me a long time to be able to talk about the Southport stabbings, because they left horrors in the mind of every one of us. They shocked many on the mainland, but in Northern Ireland they recalled to our memories horrific attacks and the days of having men at our doors during a service. Times have changed, and so too have procedures, but we still have enough trauma to recognise the danger. The churches and charity groups tell me that they want to be equipped, and to be able to respond. This legislation calls for the churches and the charities to be equipped. I am asking the Government, and in particular the Minister, to ensure that there is help and support, in case the unthinkable does take place.