Charlie Maynard MP: speeches 2026

Speeches

• 7 Jan 2026 · Advanced Brain Cancer: Tissue Freezing · Hansard source

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  My hon. Friend speaks to the point. Of course, those people have been dead for many centuries, but we believe it is worth being able to access that information, and at the moment it is not accessible in most cases. That is something we really want to change. I look to Denmark’s registry-first legal architecture, with mandatory health registries covering cancer diagnoses, pathology, genomics, and treatment and outcomes. The Danish cancer registry automatically records tumour data, covers the entire population and is used for research, oversight and quality improvement. Participation is automatic, with opt-outs rather than being consent-based. Our Government are seeking to rapidly expand our national genomics capabilities, and I applaud them for that, but without far better and more sensible access to the base tissue, with appropriate safeguards, there is no genomics-based, population-wide health service.

• 7 Jan 2026 · Advanced Brain Cancer: Tissue Freezing · Hansard source

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  It is a pleasure to serve under your chairmanship, Mr Western. I thank the hon. Member for Caerphilly (Chris Evans) for securing the debate, and I thank Ellie for all her work, as well as Hugh and the others who are pushing very hard on this issue—many thanks indeed. I want to try to make this debate a bit broader in two directions. My sister, Georgie, also has a glioblastoma. She was diagnosed two and a half years ago and has been incredibly brave and determined, working with the hon. Member for Mitcham and Morden (Dame Siobhain McDonagh) and Ellie to try to get more brain cancer justice, and driving that debate. That also applies to many people in my constituency of Witney who have brain tumours but also tumours of all sorts of cancers. We ought to be considering two things. First, I ask the Minister to consider making tumour tissue freezing standard for all cancerous tumour tissues, not just brain. However close the issue is to my heart, I think it is inequitable to just focus on brain tumours. We have to try to get all tumour tissues frozen as standard, and the economies of scale mean that makes sense. The other thing is how we have equitable and public health-oriented access to that tissue once it is stored, which we as a country are massively failing on. I ask the Minister to consider reforming the Human Tissue Act 2004, which could be broadened in terms of what is legally permitted in research contexts. That would create explicit legal pathways for retrospective clinical samples. First, clinical tissue, such as biopsies and diagnostic archives, could be routinely made available for public health research under clear safeguards, without requiring separate project-by-project consent. Secondly, requirements for de-identified tissue could be simplified, clarifying that truly anonymised, non-identifiable samples can be used without consent or an HTA licence for a wider range of research, rather than just narrowly defined exceptions. Thirdly, licences could be converted to broader authorisations. Instead of a licence for each tissue bank, accredited biobanks could be allowed to supply samples under nationally recognised frameworks. Fourthly, DNA analysis rules could be reworked. Barriers to genomic public health research could be reduced by redefining or narrowing the offence of having tissue for DNA analysis, provided that strong data protection is ensured. That is one big chunk. The second big chunk I am asking for—there are only two—is that we reform the Human Tissue Act 2004 to apply a default system similar to the one we now use nationally for organ donation to tumour tissue data. To do so, Parliament would need to amend the HTA to introduce a deemed consent regime for residual tumour tissue and derived data. That would be limited to public interest cancer research, with a statutory and simple opt-out, strict purpose limits and enhanced oversight by the Human Tissue Authority. The model would mirror the Organ Donation (Deemed Consent) Act 2019, but apply just to data derived primarily from tumour tissue. In plain English, that means that we have something that works for organ donations and saves lives day in, day out. If any of us die, our organs are taken and our next of kin can opt out if they choose. The great majority of people do not opt out. That has meant that many more organs have been available, which has saved lives. Somebody may want to dispose of their tumour tissue, but the great majority of us do not; we would want it used for public health and science, so having it as an automatic—

• 6 Jan 2026 · Less Survivable Cancers · Hansard source

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  I thank my hon. Friend the Member for Wokingham (Clive Jones) for securing this fantastic debate. I also thank the Members in the room for all the work they have done, and the Minister for her engagement, particularly with the Brain Cancer Justice team. I really appreciate it. My sister Georgie received a glioblastoma multiforme diagnosis two and a half years ago. She is well, has survived longer than they gave her and is fighting like hell for Brain Cancer Justice, alongside many in this room. I praise her and her colleagues, as well as so many people in my constituency in Witney who have helped her and who suffer with this range of cancers. I will say only two things today. First, we should explore reforming the Human Tissue Act 2004 to apply to tumour tissue a default system similar to the one we now use nationally for organ donation. To do so, Parliament would need to amend the Act to introduce a deemed consent regime for residual tumour tissue and derived data, limited to public interest cancer research, with a statutory opt-out, strict purpose limits and enhanced oversight by the Human Tissue Authority. The model would mirror the Organ Donation (Deemed Consent) Act 2019, which means that if someone dies their organs are automatically taken, although people or their families can opt out. We are advocating the same for our tumour tissue. Very few of us really want to hang on to our tumour tissue if we are unfortunate enough to be in that situation, but that tumour tissue has huge scientific value and we should use the data as much as we can for the public good. Denmark is a fantastic model: it has a registry-first legal architecture with mandatory health registries covering cancer diagnosis, pathology, genomics, treatment and outcomes. Secondly, we need to double the survival rates for all less survivable cancers in the next decade. If we put that mark in the sand as our goal, and it gets into the national cancer plan, it will draw global attention and will drag resources and talent to our cause and our country. It would be good for our country, good for our patients who are suffering, and good for our economy too. If we can make that a key demand of our national cancer plan, that will be a huge plus.

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  Will the Minister give way?

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  It is a pleasure to serve under your chairship, Mrs Harris. West Oxfordshire is very much ground zero for Thames Water. We have the Thames itself, the Evenlode and the Windrush. West Oxfordshire district council has done great work in going after Thames Water. We have WASP—Windrush Against Sewage Pollution—and we, as a team, have also gone after Thames Water through the High Court and the Court of Appeal, all the way up to the Supreme Court. I thank the legal team that fought pro bono with us last year on behalf of the 16 million Thames Water customers who are being royally stiffed. As my hon. Friend the Member for Oxford West and Abingdon (Layla Moran) mentioned, the bills people are paying are completely outrageous. I have had constituents whose bills have gone up by 50% and 70%. Somebody got a 93% increase through the post. It is outrageous.

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  We have interest costs of 9.75% being paid. We have massive advisory fees coming out of the company. All the class A creditors’ legal fees—£15 million a month, give or take—were being paid for by Thames Water. To say that this is not all hitting the customers is not true. Who else is paying for this, if it is not ultimately the customers?

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  I completely agree—well said. What is so depressing is that the Labour Government have embraced the Conservative’s mistakes over Thames Water, and our water sector more broadly, and then doubled down on them. The Government have been and continue to be hoodwinked by a bunch of hedge-funds whispering about financial Armageddon into ears of the Department for Environment Food and Rural Affairs and Ofwat. They need to follow through on their regulatory obligations, because we need regulators that have teeth and backbone and will actually deliver. Instead, we have hedge-funds making vast fees with outrageous interest expenses, at the cost of us as consumers. It is not fair. It is a great shame, and it is also unnecessary, because the company’s financial and environmental positions are completely unsustainable. With every day that passes, this becomes more Labour’s problem. We now need to cut the rope and put the company into special administration, on account of its many breaches of its licence obligations, so that its debt can be written down to around three times cash flow and it can come out of the special administration regime mutually owned by 16 million customers, and run on behalf of them and the environment, and with Government-guaranteed funding mechanisms in place to fund the investment required over the next three, five and 15 years. Will the Government please answer my letter to the Minister responsible for sewage and flooding, sent at the start of October? I asked whether the Minister believes that Thames Water’s ad hoc group of class A creditors now exerts material influence over it, thereby meeting the “ultimate controller” criteria. I would really like an answer on that. Last February, a High Court judge found that they have material influence over the company, and it would be great to have a straight answer from the Secretary of State or the Minister on that point. I would not like the Government to give Thames Water, or any other water company, a free pass on paying environmental fines in full. When there are breaches, we need regulators that enforce the fines that are in place. Similarly, given the extreme precarity of the company’s finances, as my hon. Friends have mentioned, the Government should not entrust it with delivering a huge and costly infrastructure project in Oxfordshire in the form of the south-east strategic reservoir option, about which my hon. Friends the Members for Didcot and Wantage (Olly Glover) and for Oxford West and Abingdon spoke in detail. Given all our constituents’ low level of faith in Thames Water, the future of which is precarious, to put it extremely mildly, it is no wonder that this is causing such alarm to residents in my constituency and those of my hon. Friends. Please do not be bamboozled by the hedge funds; instead, show some backbone—and do not own the Tories’ mistakes. That is the key thing, because this Government still have a chance to leave it with them. Please do so and put the company into a special administration regime.

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  I concur with those views from the hon. Member for Boston and Skegness (Richard Tice), but can the Minister confirm that those discussions with class A creditors will not involve forgiving the company for its fines?

• 6 Jan 2026 · Future of Thames Water · Hansard source

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  Will the hon. Gentleman give way?