Alison Hume MP: speeches

Speeches

• 13 Jun 2025 · Terminally Ill Adults (End of Life) Bill · Hansard source

  More

  New clause 15 particularly addresses the role of coroners. Coroners investigate deaths in which there is a reasonable suspicion that the deceased has died a violent or unnatural death, where the cause of death is unknown, or if the deceased died while in custody or state detention. This is not the case with an assisted death, and there would already be strong safeguards in place, including multiple layers of oversight and assessment. The process is cautious, thorough, and heavily safeguarded. There is no need to investigate an assisted death, as it is not unnatural. In this country, it is still a crime to help someone die peacefully and with dignity, even when they are suffering unbearably from a terminal illness.

• 13 Jun 2025 · Terminally Ill Adults (End of Life) Bill · Hansard source

  More

  I am coming to my conclusion. New clause 15 will protect bereaved families such as that of my constituent Anthony, and therefore I urge hon. Members to support it.

• 13 Jun 2025 · Terminally Ill Adults (End of Life) Bill · Hansard source

  More

  My hon. Friend makes a powerful case on behalf of her constituent. New clause 15 is a compassionate and practical clause, ensuring that the Bill works not only for the individual making the choice, but for the families they leave behind. Let us not turn our backs on people like Anthony and Louise; let us not make criminals out of the compassionate. The death of a loved one is always difficult. When someone has gone through the legal and safeguarded process of assisted dying, it is not right that their family should face an unnecessary, potentially lengthy and distressing coroner’s investigation.

• 13 Jun 2025 · Terminally Ill Adults (End of Life) Bill · Hansard source

  More

  I will make some progress, thank you. It is still a crime, even when the person is of sound mind and even when it is their deeply considered wish. Anthony wanted a good death—he wanted to die peacefully and with grace, without pain and without profound suffering. He got that in a foreign country, far from home and far from family, because our laws force people like him to make that desperate journey abroad. That is why I support this Bill and, in particular, new clause 15, as there is no need for coroners to investigate an assisted death.

• 13 Jun 2025 · Terminally Ill Adults (End of Life) Bill · Hansard source

  More

  I rise to speak in favour of new clause 15, which clarifies that an assisted death would not be classified as an unnatural death and that a full coroner’s inquest would not normally be required. My constituent Anthony Shackleton lived with motor neurone disease for six long years. As his condition worsened, his options narrowed until there was only one choice that preserved his dignity, autonomy and peace: to travel to Dignitas in Switzerland and end his suffering on his own terms. Louise, as his wife of 25 years, and someone who had known him since the age of 18, did what any loving partner would do: she stood by him. She helped him on to that plane and held his hand through the most difficult decision of their lives, and now, for that act of love, she is under police investigation. That is precisely why we need new clause 15. If the Bill is passed, assisted dying would be a legal, strictly regulated and monitored choice made by the individual concerned.

• 12 Jun 2025 · Long-term Medical Conditions · Hansard source

  More

  It is a pleasure to serve under your chairmanship, Mr Efford. I thank my hon. Friend the Member for Bury St Edmunds and Stowmarket (Peter Prinsley) for securing this extremely important debate. He speaks from a position of great experience. He rightly points to a holistic approach, putting the patient at the centre of their treatment. By 2035, two thirds of the UK population aged over 65 are expected to be living with two or more long-term conditions, whether chronic obstructive pulmonary disease, Parkinson’s, diabetes or epilepsy. Living with an LTC can significantly reduce a person’s quality of life. I rise to speak on behalf of those living with a condition that affects approximately 1.5 million women in the UK: endometriosis. This chronic condition, whereby tissue similar to the lining of the womb grows outside the uterus, causes debilitating pain, fatigue and often infertility, yet despite its prevalence it remains under-recognised and undertreated, like so many conditions that affect women. The average time to diagnose in the UK is more than eight years. Many women visit their GPs multiple times before receiving a referral, and some are forced to turn to private healthcare due to the lengthy NHS waiting times. That delay not only exacerbates the condition’s physical symptoms but impacts mental health and quality of life. Endometriosis is not merely a health issue for women; it is a public health issue that costs the UK economy. Over half of those affected have taken time off work due to endometriosis, and many fear job loss or reduced income. My constituent, Angela Tiernan, has thoracic endo-metriosis, a rare form of the condition where tissue similar to the uterine lining grows in the chest cavity, commonly affecting the diaphragm and lungs. Angela recently found out that planned surgery to confirm her diagnosis and reformulate a treatment plan would no longer be going ahead as the specialist Oxford University Hospitals has stopped commissioning the surgery, as have other specialist centres in London and Bristol. Angela has told me that patients are being advised to go private to access required treatments and surgeries that were previously available through the NHS, but have since been cancelled by the hospital. My constituent Angela and other women are now left in a position with no diagnosis and no access to investigation, care or treatment unless they can afford to go private. Endometriosis is a long-term condition that requires a long-term solution. I ask the Minister for reassurance that endometriosis is addressed in our 10-year-plan.

• 4 Jun 2025 · Disadvantaged Communities · Hansard source

  More

  It is a pleasure to serve under your chairship, Sir Roger. I thank my hon. Friend the Member for Wolverhampton North East (Mrs Brackenridge) for securing this important debate; she is a huge champion for disadvantaged communities in her constituency. I am proud to represent the beautiful constituency of Scarborough and Whitby. However, away from the tourist lens, we have deprivation. My constituents suffer high rates of chronic illnesses like heart disease, and have lower life expectancies. In Scarborough, life expectancy for people living in Ramshill, where child poverty is prevalent, is 10 years less than it is for those living in Ayton, a mere 10-minute drive away. Despite that, my constituents struggle to access healthcare, and even emergency care, in a timely manner. Since the closure of Scarborough hospital’s stroke service in 2020, patients suffering strokes are sent directly to York, which is well over an hour away—if they have access to a car. Hon. Members will know that the first 60 minutes after a stroke occurs is known as the golden hour: the faster someone can be treated, the more likely they are to survive and recover. Despite that, one constituent told me that their partner’s emergency journey to York, in a blue-lit ambulance, took 90 minutes. That is the everyday reality for people in disadvantaged coastal communities. The chief medical officer warned in 2021 of a crisis in coastal healthcare, but we still have no national strategy to combat it. So this is my plea to the Government: we need a cross-departmental strategy to deliver better access to healthcare in our disadvantaged coastal communities, and we need it now.

• 19 May 2025 · Mental Health Bill [Lords] · Hansard source

  More

  Recently, I met grandparents in my constituency who are caring for their grandchild, who was recently diagnosed with autism. Their grandchild is suffering from poor mental health and is unable to attend school, and the family is struggling to access support. I welcome the Government’s work so far in this area, including the pledge to have a specialist mental health professional in every school, but does my hon. Friend agree that a three-year wait for an appointment with CAMHS, as my constituents are facing, is completely unacceptable?

• 7 Apr 2025 · Road Maintenance · Hansard source

  More

  In my constituency of Scarborough and Whitby, the views take your breath away. Sadly, so do the potholes when your car hits one—not just when it happens, but when the repair bill arrives. According to the RAC, the cost of pothole damage to vehicles is around £600 on average, with more severe repairs costing considerably more. Potholes do not just damage cars; they damage people. One constituent has told me that when his disabled father is driven to the doctors or to hospital appointments, it is almost inevitable that they hit a pothole on the way, which causes him pain. Another Scarborough constituent told me that the journey she needed to take to York hospital to attend the pain clinic was too painful because of the quality of the roads, and that she therefore stopped making it, despite being in a huge amount of pain. The Conservative-run North Yorkshire council says that keeping our roads in the best condition for the money it has is one of the biggest challenges it faces, and that is why it is brilliant that the York and North Yorkshire combined authority will soon be receiving its share of the Labour Government’s record £1.6 billion road maintenance funding. This is the biggest one-off road maintenance funding settlement that councils have ever been given. For Mayor Skaith in York and North Yorkshire, it is £62.1 million, an increase of £16.6 million. Of course, I have spoken to the Mayor about the importance of ensuring the quality of repairs in my constituency of Scarborough and Whitby. Maple Drive in Scarborough is home to Northstead community primary school. It is a very busy road and it is littered with potholes, which are regularly reported to the council using its online tool. Workmen duly arrive to fill the potholes, but my constituents report that they soon reappear, bigger than before, leaving Maple Drive looking like a patchwork quilt—but, it has to be said, not a particularly attractive one. It is vital that we abandon the patch-and-run approach and focus on permanent and innovative repairs, especially given the cold and increasingly wet winters we encounter on the coast. I welcome the caveat attached to the money, which means that the combined authority will need to publish annual progress reports and prove to the public that the work is being done to a high standard. After years of Conservative neglect, drivers in Scarborough, Whitby and the villages can, thanks to this Labour Government, look forward to smoother, safer local roads.

• 10 Mar 2025 · Crime and Policing Bill · Hansard source

  More

  I warmly welcome the clauses in this landmark Bill that will give greater protection to victims of stalking—including guidance for police about disclosing the identity of online stalkers to victims—and clarify what constitutes stalking so that the police have no excuse not to pursue incidents. Some 91% of victims surveyed by the Suzy Lamplugh Trust had suffered from mental health problems as a result of being stalked. Being stalked is also an indicator of being at high risk of domestic homicide. It is vital that victims feel safe to report what they are suffering, which is why I welcome the opening of the purpose-built Acer House centre for victims of rape and sexual assault in York and North Yorkshire. It has been designed in consultation with victims to provide a safe and supportive environment in which evidence can be collected, and people can receive immediate health care and a medical examination if needed. According to Women’s Aid, stalking by ex-partners accounts for the largest group of stalking victims, with the vast majority of victims being women. As with domestic abuse in general, rates of prosecution and conviction are shockingly low. In the year to March 2024, North Yorkshire police recorded 1,045 stalking offences, but only 75 resulted in a charge or summons. In just over half the original cases, the victim chose not to pursue the case. Work by the Suzy Lamplugh Trust helps to explain why, and argues that victims have been let down at every stage by the police, the CPS, and the courts. The trust’s super-complaint against the police in 2022 found that they were not even identifying stalking cases, and even when they were, they often did not properly investigate. The trust recommended that stalking protection orders should be applied for and put in place at as early a stage as possible. After years of failure under the Tories, this Bill cannot come soon enough for victims of stalking. New domestic abuse protection orders have been piloted, which victims can apply for themselves. Stalking victims also feel that their lives are controlled by someone else, so giving them the chance to apply for a stalking protection order would hand power back to them. I am so pleased that the Government are considering wider changes to stalking protection orders, and I invite the Minister to comment on whether they will look at allowing victims to apply for them. To conclude, on behalf of my constituents in Scarborough and Whitby I am proud to support the Bill.

• 13 Jan 2025 · Hospice and Palliative Care · Hansard source

  More

  Thank you, Madam Deputy Speaker, for calling me to speak in this important debate, and I thank the hon. Member for Wimbledon (Mr Kohler) for securing it. I am grateful that the Government have recognised the immense importance of our hospices’ vital work with the recent announcement of a £100 million funding package. My constituency is served by the extraordinary work of St Catherine’s hospice. For 40 years, St Catherine’s has supported and lovingly cared for individuals with a terminal illness and their families, not only on site in Scarborough but in people’s homes in an area of North Yorkshire covering more than 1,600 square miles. St Catherine’s provides an incredible service and, like most hospices around the country, is a charitable, independent organisation largely funded through donations, fundraising and the income from its high street charity shops. I would like to place on record my sincere thanks to the wonderful staff, the army of selfless volunteers who give freely of their time, and the generosity of the local people who all ensure that hospice care is available to everyone in the constituency. St Catherine’s welcomed our recent funding announcement, but it is clear that one-off capital injections alone will not address the underlying structural funding deficit. At the heart of the issue is the lack of clarity, equity and accountability in how integrated care boards allocate funding. Currently, there is no standard formula for funding distribution, which is creating disparity across hospices. St Catherine’s receives approximately 30% of its funding from the NHS, which is insufficient to meet the growing needs of the community. Some hospices receive much more, and others slightly less. Greater transparency and a consistent framework are needed to ensure equitable funding across all providers, whether NHS or charity based. This inequity places immense pressure on charitable fundraising and limits what hospices can achieve. St Catherine’s alone must raise over £6 million annually. Surely the hospice sector needs funding models that align with service outcomes. A model similar to the mental health investment standard, mandating a minimum level of investment in palliative and end of life care, could perhaps provide the consistency and accountability that are so urgently needed. Long-term strategy is equally critical. It is my hope that a 10-year NHS plan will include detailed guidance for ICBs on commissioning hospice care, supported by a national funding strategy that reduces reliance on voluntary contributions for essential services. Dame Cicely Saunders, the founder of the modern hospice movement, said: “You matter because you are you. You matter to the last moment of your life”. Our hospices strive to make every moment matter for patients and their loved ones. We must recognise hospices as integral partners within the healthcare system. By doing so, we will ensure that hospices are adequately supported to deliver extraordinary care both now and in the future.

• 8 Jan 2025 · Children’s Wellbeing and Schools Bill · Hansard source

  More

  I warmly welcome the Bill and the Secretary of State’s commitment to tackling the SEND crisis in our schools—a crisis that developed over more than a decade of neglect, and which will not be resolved overnight. The Bill’s proposal to introduce a duty for local authorities to keep a register of children who are not in school is causing concern among families with children who have special educational needs and disabilities in my constituency. The concern is based not on the Bill but on the battles that parents find themselves fighting in order to ensure that their child’s needs are met. As a survivor of the SEND jungle, I understand the state of perpetual worry that families live with, and I understand that they are fearful that the introduction of a register may result in increased pressure from the local authority for their child to attend school without the support they need. Last year saw a 40% increase in the number of requests for education, health and care plans in Scarborough and Whitby from the previous year, and almost 30% of decisions on EHCPs took six months or longer, leaving children without the support they needed while waiting. If a child does receive an EHCP, parents often feel that the provision offered does not correspond to their needs as there is a shortage of key professionals and funding is often pooled rather than used for the one-to-one support that they really need. In my experience, parents do not take the decision to withdraw their child from school lightly. One constituent has faced fines for her son’s non-attendance that she cannot afford to pay and problems at work because he is at home. Another constituent, Karen, who runs the marvellous charity Closer Communities in Scarborough, which supports families in this situation, has struggled to get appropriate support for her own son. Karen, who was a senior manager in the NHS, was forced to put her own career on hold, which inevitably had financial implications for her family. Withdrawing a child from school is not easy and can have a major impact on a family. Most would prefer for their child to be educated in a mainstream school, where they get the support they need. I am proud that the Government are working hard to ensure that that happens in the future with more targeted mainstream provision. I hope that the Secretary of State can reassure parents like those I have described that they have nothing to fear from the legislation. Will she consider whether the register could be used to distinguish between parents who home-school by choice and those who do so because they have no choice?

• 7 Jan 2025 · Employment Rights Bill (Sixteenth sitting) · Hansard source

  More

  It is a pleasure to serve under your chairmanship once again, Sir Christopher. I know that the shadow Minister likes us to draw attention to our union membership, so I again draw attention to my membership of Unison. I welcome clause 59 because it addresses the critical issue of protecting workers taking part in industrial action, ensuring that they are safeguarded not just against dismissal but against other forms of detriment. As my hon. Friend the Member for Birmingham Northfield has previously mentioned, the case of Fiona Mercer, a care worker suspended after participating in legal industrial action, highlights why the reforms are needed. Like so many care workers, Fiona dedicated her career to supporting some of the most vulnerable in our society—in Fiona’s case, adults with learning difficulties. Yet she faced suspension for standing up for fair pay and better conditions. Her case is a pertinent reminder of the vulnerabilities faced by workers in critical sectors such as social care when their legal rights are not adequately protected. Therefore, I welcome the clause’s introduction of protections against detriment, ensuring that employers cannot punish workers like Fiona for exercising their right to strike. This provision is essential to safeguard the ability of care workers and others to advocate for fair treatment without fear of suspension, demotion or other retaliatory measures. The removal of the arbitrary 12-week protected period for unfair dismissal means that workers like Fiona can continue to fight for justice without compromising on protections.

• 17 Dec 2024 · Employment Rights Bill (Fourteenth sitting) · Hansard source

  More

  It is a pleasure to serve with you in the Chair once again, Ms Vaz. I remind the Committee about my membership of Unison. We all want to live in a place we can call home, with people and things we love, in communities where we look out for one another and do the things that matter to us. Adult social carers support millions of people every day in that. The shadow Minister rightly spoke about the vital contribution made by social work carers who go to support people in their own homes, but there are other carers who support people who have highly complex needs to live in specialised settings. One of those people is my adult son, who has been in supported living for the last six years. It took a while to find him the right setting, but he is now living in a specialised service that accommodates people who have a diagnosis of autism spectrum disorder, and I am pleased to say that he is thriving. Members of the Committee may be aware that one of the defining characteristics of ASD is how neurodivergent people relate to, and connect with, the people who care for them. My son sees his carers as being part of an extended circle of trust—not family, but close. After all, why shouldn’t he? They support him with all his daily living needs. They plan his meals, accompany him to the shops to buy food, help him to cook it and keep him company while he eats it. They help him to do all the chores that any 26-year-old young man would rather not do at all. But far more importantly, the staff who care for my son help him in all aspects of his life so that he can achieve the best he can, whether through volunteering to build up his confidence or through educational opportunities to improve his prospects of work. Many of these staff are highly skilled. I cannot speak highly enough of the work they do. They have worked in adult social care for many years and are dedicated to the people they care for, like my son, but others are new in the job and do not stay long. That is not as a result of not wanting to do the job, but of not being able to afford to stay in the job. In fact, some carers live in poverty. For young adults like my son, the turnover and lack of consistency in staff, which is no fault of the organisation that employs them, means that his extended circles of trust are continually broken down. That leads to a lack of engagement, which affects his mental health and wellbeing. I wanted to talk about my lived experience to shed light on why the adult social care negotiating body and the whole Bill are so important, because we so need a step change in our attitude to social care. We must respect the work that social care workers do and value it more highly. Three quarters of those who work in the industry are women, and they earn around only 68% of the median salary for all UK employees. It is just not good enough. I welcome the negotiating body, which I believe will be a game changer in addressing low pay and insecure employment. It will send a powerful message to the 1.59 million social care workers in England to say, “You are valued, you are respected and you are part of a profession that I am proud to say the new Government are committed to supporting in the long term.”

• 12 Dec 2024 · Employment Rights Bill (Eleventh sitting) · Hansard source

  More

  It is an honour to serve under your chairship again, Ms Vaz. I draw the Committee’s attention to my declaration of interests and my membership of Unison and the Writers’ Guild of Great Britain. I associate myself with the shadow Minister’s comments about the positive results that the legislation will have when it comes into force. I will speak briefly about the importance of clauses 20 and 21, which will afford considerable extra protections to women who are pushed out of their jobs from the point at which they get pregnant, while they are pregnant, while they are taking maternity leave or just after they return. We heard at our evidence sessions that under the coalition Government, a report was done by the Equality and Human Rights Commission, which found that it was possible that 54,000 women a year lose their jobs in this way. That report was published in 2016. We also heard the Fawcett Society call for a new report because the data is so out of date. I refer to the comments made by my hon. Friend the Member for Birmingham Northfield and the shadow Minister about the lack of data. Nobody can argue with the fact that so many women suffer maternity discrimination, however. From January to September 2023, 832 complaints were brought to employment tribunal for detriment or unfair dismissal as a result of pregnancy, and we know that that is the tip of the iceberg. Back in 2022, there was a high-profile example when Morrisons was told to pay a mother £60,000 for discriminating against her when she returned from maternity leave. Donna Patterson, who returned to work after having her second child, was asked to fulfil the responsibilities of a full-time job, despite only being contracted to work part-time hours. Ms Patterson was supported by the charity Pregnant Then Screwed, the founder of which, Joeli Brearley, told us that “the dial has not moved very much” –– [ Official Report, Employment Rights Public Bill Committee, 26 November 2024; c. 84, Q79.] in 10 years, so this Bill will mark a significant step forward. When women suffer maternity discrimination, not only does it take them a long time to recover personally, but it damages their careers and their mental health, and it is a big contributor to the gender pay gap. These clauses will tackle maternity and pregnancy discrimination, and it is necessary to do that to avoid having more women leave the workplace.

• 10 Dec 2024 · Employment Rights Bill (Ninth sitting) · Hansard source

  More

  It is a pleasure to serve under your chairmanship, Mr Mundell. I thank the hon. Member for giving way. I refer the Committee to my declaration of interests and my membership of Unison and the Writers’ Guild of Great Britain. The NHS has zero-tolerance policies, in common with the police service and any other service that deals with these difficult situations. They are good employers that have things in place. The shadow Minister spoke about employers not thinking about situations and being innocent. I draw his attention to their responsibility to employees who were innocent, but have lost their innocence as a result of unwanted sexual harassment or worse.

• 5 Dec 2024 · Employment Rights Bill (Eighth sitting) · Hansard source

  More

  It is a pleasure to serve under your chairship, Sir Christopher. We in this place enjoy the employment rights that come with our job, which is to serve our constituents to the best of our ability. When we are unwell, we can take time off but we are still paid. Before I arrived here, I spent a considerable number of years working as a freelancer while bringing up my family; I believe that is now called being a worker in the gig economy. I understand all too well the pressure for people to work when they are unwell, as they juggle work around caring responsibilities, as I had to for my disabled son, and worry about money, as our family worried about how we would pay the rent and the other bills if I did not work. At present, large numbers of workers either rely on statutory sick pay or receive nothing at all if they are absent from work due to illness. Those workers are more likely to be low paid than others. We also heard in the evidence sessions last week that women are currently more likely to miss out on statutory sick pay than men, because they do not earn enough to meet the threshold or have not been in their jobs for long enough. It is estimated that 1.1 million workers earn less than £123 a week and most of them are women who are not eligible for statutory sick pay at all. In practice, as we heard in the evidence sessions last week and as Minister just referred to, that means that people drag themselves into work despite the fact that they are ill. As it stands, our sick pay system pushes far too many people to go to work when they are ill. Working while in poor health is more common among those from marginalised ethnic groups, people in lower-quality jobs and workers lacking formal qualifications. Under the Bill, hundreds of thousands of people will qualify for sick pay from the first day that they are ill. That change and other changes will help to increase productivity, reduce prolonged illness due to exacerbating existing conditions, and lead to better public health outcomes. Lower-paid workers will no longer have to face the unpalatable choice between coming to work and risking spreading infection, or struggling to put food on the table and to pay bills. Those are very real concerns that, as I mentioned, I have faced. In conclusion, I believe that the Bill will transform the world of work for millions of people across the country. If I may say so, it is a privilege to have played a small part in scrutinising it.

• 4 Dec 2024 · Farming and Inheritance Tax · Hansard source

  More

  The right hon. Member left a trail of destruction across the Government. She was the Health Secretary who broke the NHS, the Prisons Minister who ran out of prison places and the Treasury Minister who crashed the economy—no wonder her constituency majority crashed from 28,000 to 5,000. [ Interruption. ] Does she not think it is time to apologise and for once to support the Government, who are bringing back stability to the British economy and farmers’ profitability?

• 3 Dec 2024 · Employment Rights Bill (Fifth sitting) · Hansard source

  More

  I draw the Committee’s attention to my declaration of interests and my membership of the trade unions Unison and the Writers’ Guild of Great Britain. I am pleased that the Bill will increase protection from sexual harassment, being one of those middle-class women of a certain age—the Government’s commitment to holding workplace offenders to account cannot come soon enough. Last week, we heard that there is strong evidence that the majority of sexual harassment in the workplace, particularly in retail and hospitality, comes from third parties—a client, customer or patient. Surely, the hon. Member would agree that it is essential that employers can take reasonable steps to prevent harassment by third parties, because the net effect on the victim is the same whether that behaviour comes from a direct co-employee or a third party.

• 28 Nov 2024 · Employment Rights Bill (Fourth sitting) · Hansard source

  More

  Q Minister, we have touched on adult social care today. There are 1.6 million workers in the sector. I know that news of the adult social care negotiating body has been warmly welcomed. Can you expand on why a fair pay agreement is so important for the adult social care sector? Justin Madders: That is a really good question. One of the reasons was in your question—there are 1.6 million people employed in the sector. It is a huge part of the economy. Unfortunately, at the moment, as we heard in the evidence, it is characterised by poor terms and conditions and high numbers of zero-hours contracts, and quite often minimum wage is not enforced properly. These are people doing really important jobs in our society. They deserve a voice and a collective opportunity to raise terms and conditions, and the opportunity to work with employers to develop a career path. This is a transformative structure that will hopefully change the lives of many working people and, of course, the people they care for.